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  • February 17, 2020 at 11:14 pm in reply to: #130185

    Ludovica Durst
    Member

    Hi all, just a quick reminder about our TC scheduled for tomorrow, Tuesday 18th Feb. at 2 pm.
    Best, Ludovica
    —– Messaggio originale —–
    Da: “l durst”
    A: “l durst”
    Cc: “bc-app-health”
    Inviato: Martedì, 4 febbraio 2020 15:10:41
    Oggetto: Re: [bc-app-health] Blockchain APPS in HEALTH WG TC
    Dear all,
    thank you to those of you who participated in the doodle poll. As per the doodle outcome, our WG TC is scheduled for Tuesday 18 February 2pm-3pm CET.
    I hope you can join us!
    Please, find below the gotomeeting invitation.
    Best, Ludovica
    RDA WG Blockchain Applications in Health
    Tue, Feb 18, 2020 2:00 PM – 3:00 PM (CET)
    Please join my meeting from your computer, tablet or smartphone.
    https://global.gotomeeting.com/join/278666381
    You can also dial in using your phone.
    (For supported devices, tap a one-touch number below to join instantly.)
    United States: +1 (571) 317-3129
    – One-touch: tel:+15713173129,,278666381#
    Access Code: 278-666-381
    More phone numbers:
    (For supported devices, tap a one-touch number below to join instantly.)
    Australia: +61 2 9087 3604
    – One-touch: tel:+61290873604,,278666381#
    Austria: +43 7 2081 5427
    – One-touch: tel:+43720815427,,278666381#
    Belgium: +32 28 93 7018
    – One-touch: tel:+3228937018,,278666381#
    Brazil: +55 21 3500-3941
    – One-touch: tel:+552135003941,,278666381#
    Canada: +1 (647) 497-9391
    – One-touch: tel:+16474979391,,278666381#
    Denmark: +45 32 72 03 82
    – One-touch: tel:+4532720382,,278666381#
    Finland: +358 923 17 0568
    – One-touch: tel:+358923170568,,278666381#
    France: +33 170 950 594
    – One-touch: tel:+33170950594,,278666381#
    Germany: +49 692 5736 7317
    – One-touch: tel:+4969257367317,,278666381#
    Ireland: +353 15 360 728
    – One-touch: tel:+35315360728,,278666381#
    Italy: +39 0 247 92 13 01
    – One-touch: tel:+390247921301,,278666381#
    Mexico: +52 55 3687 7278
    – One-touch: tel:+525536877278,,278666381#
    Netherlands: +31 207 941 377
    – One-touch: tel:+31207941377,,278666381#
    New Zealand: +64 9 280 6302
    – One-touch: tel:+6492806302,,278666381#
    Norway: +47 21 93 37 51
    – One-touch: tel:+4721933751,,278666381#
    Spain: +34 932 75 2004
    – One-touch: tel:+34932752004,,278666381#
    Sweden: +46 853 527 827
    – One-touch: tel:+46853527827,,278666381#
    Switzerland: +41 225 4599 78
    – One-touch: tel:+41225459978,,278666381#
    United Kingdom: +44 20 3713 5028
    – One-touch: tel:+442037135028,,278666381#
    New to GoToMeeting? Get the app now and be ready when your first meeting starts: https://global.gotomeeting.com/install/278666381
    —– Messaggio originale —–
    Da: “bc-app-health”
    A: “bc-app-health”
    Inviato: Lunedì, 13 gennaio 2020 15:20:04
    Oggetto: [bc-app-health] Blockchain APPS in HEALTH WG TC
    Dear Blockchain Applications in Health WG members, Happy New Year!
    As you know, our session proposal for the next RDA P15 was accepted, and we are now looking forward to get ready for it and complete the “Comprehensive Guidelines on Blockchain Applications in Health” we aim to deliver as WG output.
    We would like to have a couple of TCs with you before P15 in March, to discuss how to adapt the “decision tree” scheme provided (BLOCKCHAIN ADOPTION EVALUATION FRAMEWORK, https://www.rd-alliance.org/blockchain-adoption-evaluation-framework) to your specific use cases, and include it in the final output.
    Please, select your preferred options by Friday, 24 January, in the doodle at the following link: https://doodle.com/poll/gp7yydgskvs89ifc.
    Looking forward to meeting you!
    Best
    Ludovica
    —
    Ludovica Durst, Ph. D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. +39 06 8440801
    Fax +39 06 85344833
    —
    Full post:
    https://www.rd-alliance.org/group/blockchain-applications-health-wg/post…
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post:
    https://www.rd-alliance.org/mailinglist/unsubscribe/67438

  • February 4, 2020 at 2:10 pm in reply to: #130199

    Ludovica Durst
    Member

    Dear all,
    thank you to those of you who participated in the doodle poll. As per the doodle outcome, our WG TC is scheduled for Tuesday 18 February 2pm-3pm CET.
    I hope you can join us!
    Please, find below the gotomeeting invitation.
    Best, Ludovica
    RDA WG Blockchain Applications in Health
    Tue, Feb 18, 2020 2:00 PM – 3:00 PM (CET)
    Please join my meeting from your computer, tablet or smartphone.
    https://global.gotomeeting.com/join/278666381
    You can also dial in using your phone.
    (For supported devices, tap a one-touch number below to join instantly.)
    United States: +1 (571) 317-3129
    – One-touch: tel:+15713173129,,278666381#
    Access Code: 278-666-381
    More phone numbers:
    (For supported devices, tap a one-touch number below to join instantly.)
    Australia: +61 2 9087 3604
    – One-touch: tel:+61290873604,,278666381#
    Austria: +43 7 2081 5427
    – One-touch: tel:+43720815427,,278666381#
    Belgium: +32 28 93 7018
    – One-touch: tel:+3228937018,,278666381#
    Brazil: +55 21 3500-3941
    – One-touch: tel:+552135003941,,278666381#
    Canada: +1 (647) 497-9391
    – One-touch: tel:+16474979391,,278666381#
    Denmark: +45 32 72 03 82
    – One-touch: tel:+4532720382,,278666381#
    Finland: +358 923 17 0568
    – One-touch: tel:+358923170568,,278666381#
    France: +33 170 950 594
    – One-touch: tel:+33170950594,,278666381#
    Germany: +49 692 5736 7317
    – One-touch: tel:+4969257367317,,278666381#
    Ireland: +353 15 360 728
    – One-touch: tel:+35315360728,,278666381#
    Italy: +39 0 247 92 13 01
    – One-touch: tel:+390247921301,,278666381#
    Mexico: +52 55 3687 7278
    – One-touch: tel:+525536877278,,278666381#
    Netherlands: +31 207 941 377
    – One-touch: tel:+31207941377,,278666381#
    New Zealand: +64 9 280 6302
    – One-touch: tel:+6492806302,,278666381#
    Norway: +47 21 93 37 51
    – One-touch: tel:+4721933751,,278666381#
    Spain: +34 932 75 2004
    – One-touch: tel:+34932752004,,278666381#
    Sweden: +46 853 527 827
    – One-touch: tel:+46853527827,,278666381#
    Switzerland: +41 225 4599 78
    – One-touch: tel:+41225459978,,278666381#
    United Kingdom: +44 20 3713 5028
    – One-touch: tel:+442037135028,,278666381#
    New to GoToMeeting? Get the app now and be ready when your first meeting starts: https://global.gotomeeting.com/install/278666381
    —– Messaggio originale —–
    Da: “bc-app-health”
    A: “bc-app-health”
    Inviato: Lunedì, 13 gennaio 2020 15:20:04
    Oggetto: [bc-app-health] Blockchain APPS in HEALTH WG TC
    Dear Blockchain Applications in Health WG members, Happy New Year!
    As you know, our session proposal for the next RDA P15 was accepted, and we are now looking forward to get ready for it and complete the “Comprehensive Guidelines on Blockchain Applications in Health” we aim to deliver as WG output.
    We would like to have a couple of TCs with you before P15 in March, to discuss how to adapt the “decision tree” scheme provided (BLOCKCHAIN ADOPTION EVALUATION FRAMEWORK, https://www.rd-alliance.org/blockchain-adoption-evaluation-framework) to your specific use cases, and include it in the final output.
    Please, select your preferred options by Friday, 24 January, in the doodle at the following link: https://doodle.com/poll/gp7yydgskvs89ifc.
    Looking forward to meeting you!
    Best
    Ludovica
    —
    Ludovica Durst, Ph. D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. +39 06 8440801
    Fax +39 06 85344833
    —
    Full post:
    https://www.rd-alliance.org/group/blockchain-applications-health-wg/post…
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post:
    https://www.rd-alliance.org/mailinglist/unsubscribe/67438

  • December 23, 2019 at 10:29 am in reply to: #130246

    Ludovica Durst
    Member

    Dear Isabel,
    thank you! Great news!
    We’ll address TAB’s suggestions to improve our session and keep in touch after Christmas Holidays.
    Best wishes to all of you!
    —– Messaggio originale —–
    Da: “bc-app-health”
    A: “bc-app-health”
    Cc: “andrew treloar” , “Marieke Willems”
    Inviato: Sabato, 21 dicembre 2019 4:52:58
    Oggetto: [bc-app-health] RDA P15 Melbourne – Session Acceptance
    Dear Blockchain Applications in Health Working Group,
    At its meeting
    on December 19, the RDA Technical Advisory Board considered your
    proposal for a session at Plenary 15 in 2020.
    We are happy to advise
    you that your session proposal “Comprehensive Guidelines on Blockchain
    Applications in Health” has been accepted. Congratulations!
    TAB has
    some suggestions below for how you could improve your session. Please
    update the session description accordingly to provide the best
    information for potential attendees.
    Suggested improvements:
    –
    Agenda timings are required
    – Reference material related to the actual
    content (working documents etc) to be provided
    – The guidelines should
    be made available before the session, with a message on the WG and
    Health IG mailing lists inviting for comments in reply to the message
    and a link from the session web page
    – More time has to be available
    for discussion
    – Check that the WG output is fully discussed at RDA
    level
    Best regards,
    Isabelle Perseil, TAB co-chair
    —
    Full post: https://www.rd-alliance.org/group/blockchain-applications-health-wg/post…
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post: https://www.rd-alliance.org/mailinglist/unsubscribe/67300

  • December 23, 2019 at 10:27 am in reply to: #130247

    Ludovica Durst
    Member

    Dear Isabelle
    thank you for the good news!
    We’ll take care of improving TAB’s suggestions for the meeting agenda just after the Holidays.
    Best wishes to all of you
    —– Messaggio originale —–
    Da: “healthdata”
    A: “healthdata”
    Cc: “andrew treloar” , “Marieke Willems” , “isabelle perseil”
    Inviato: Sabato, 21 dicembre 2019 3:39:33
    Oggetto: [healthdata] RDA P15 Melbourne – Session Acceptance
    Dear Health Data Interest Group,
    At its meeting on December 19, the
    RDA Technical Advisory Board considered your proposal for a session at
    Plenary 15 in 2020.
    We are happy to advise you that your session
    proposal “Transparency and Trust in Health Data” has been accepted.
    Congratulations!
    TAB has some suggestions below for how you could
    improve your session. Please update the session description accordingly
    to provide the best information for potential attendees.
    Suggested
    improvements:
    – The meeting agenda should be more than just a list of
    objectives, with the way you plan to meet those objectives.
    – You
    should better care about the timings. Enough room for discussion is
    needed. One way info transfer is not acceptable
    Best regards,
    Isabelle Perseil, TAB co-chair
    —
    Full post: https://www.rd-alliance.org/group/health-data-interest-group/post/rda-p1…
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post: https://www.rd-alliance.org/mailinglist/unsubscribe/67297

  • March 21, 2019 at 5:48 pm in reply to: #130662

    Ludovica Durst
    Member

    Dear all
    thanks to those who could attend the TC, we had a fruitful exchange of ideas and addressed some first experiences/use cases that will be further discussed in Philadelphia.
    We agreed that a good starting point for our WG session will be to share use cases and experiences or evaluations from participants, so please if you have use cases/experiences to share, let us know or get ready with a short presentation if you wish to.
    It will be of great value to collect your views in order to prepare the state of the art report.
    Looking forward to meeting you in Philadelphia.
    Best regards
    Ludovica
    —– Messaggio originale —–
    Da: “l durst”
    A: “bc-app-health”
    Cc: “m demalde”
    Inviato: Martedì, 19 marzo 2019 18:10:42
    Oggetto: Re: [bc-app-health] Doodle and TC RDA Blockchain app in health WG
    Dear all
    here you are the gotomeeting details for our TC:
    RDA – Blockchain in health data WG
    Thu, Mar 21, 2019 6:00 PM – 7:00 PM CET
    Please join my meeting from your computer, tablet or smartphone.
    https://global.gotomeeting.com/join/939962461
    You can also dial in using your phone.
    (For supported devices, tap a one-touch number below to join instantly.)
    United States: +1 (571) 317-3129
    – One-touch: tel:+15713173129,,939962461#
    Access Code: 939-962-461
    More phone numbers:
    (For supported devices, tap a one-touch number below to join instantly.)
    Australia: +61 2 9087 3604
    – One-touch: tel:+61290873604,,939962461#
    Austria: +43 7 2081 5427
    – One-touch: tel:+43720815427,,939962461#
    Belgium: +32 28 93 7018
    – One-touch: tel:+3228937018,,939962461#
    Canada: +1 (647) 497-9391
    – One-touch: tel:+16474979391,,939962461#
    Denmark: +45 43 31 47 82
    – One-touch: tel:+4543314782,,939962461#
    Finland: +358 942 72 1060
    – One-touch: tel:+358942721060,,939962461#
    France: +33 170 950 594
    – One-touch: tel:+33170950594,,939962461#
    Germany: +49 692 5736 7317
    – One-touch: tel:+4969257367317,,939962461#
    Ireland: +353 15 360 728
    – One-touch: tel:+35315360728,,939962461#
    Italy: +39 0 247 92 13 01
    – One-touch: tel:+39247921301,,939962461#
    Netherlands: +31 207 941 377
    – One-touch: tel:+31207941377,,939962461#
    New Zealand: +64 9 280 6302
    – One-touch: tel:+6492806302,,939962461#
    Norway: +47 21 93 37 51
    – One-touch: tel:+4721933751,,939962461#
    Spain: +34 932 75 2004
    – One-touch: tel:+34932752004,,939962461#
    Sweden: +46 853 527 836
    – One-touch: tel:+46853527836,,939962461#
    Switzerland: +41 225 4599 78
    – One-touch: tel:+41225459978,,939962461#
    United Kingdom: +44 20 3713 5028
    – One-touch: tel:+442037135028,,939962461
    —– Messaggio originale —–
    Da: “l durst”
    A: “bc-app-health”
    Cc: “m demalde”
    Inviato: Domenica, 17 marzo 2019 19:45:08
    Oggetto: Re: [bc-app-health] Doodle and TC RDA Blockchain app in health WG
    Dear Blockchain Application in Health WG members
    as per the doodle outcomes, our TC will take place Thursday 21 March at 6 pm CET.
    A gotomeeting invite will follow.
    Thank you and hope to talk to you on the TC!
    best regards
    Ludovica
    —– Messaggio originale —–
    Da: “l durst”
    A: “bc-app-health”
    Cc: “m demalde”
    Inviato: Martedì, 5 marzo 2019 18:05:59
    Oggetto: [bc-app-health] Doodle and TC RDA Blockchain app in health WG
    Dear all
    on behalf of the Blockchain Applications in Health WG
    we’re happy to inform you that our Blockchain Applications in Health WG session at Philadelphia P13 is scheduled for Thursday 4 April at 9.00:
    https://www.rd-alliance.org/rda-13th-plenary-programme, breakout 7.
    To get prepared for the session, we’d like to discuss with you some of the issues and objectives set forth in the meeting agenda:
    https://rd-alliance.org/wg-blockchain-applications-health-rda-13th-plena…
    Here comes a doodle to hopefully find a suitable option for the most of us, everybody is welcome to join the TC, regardless the participation to the Plenary.
    https://doodle.com/poll/smeeh7qw3s48khri
    Please, fill in your preferences no later than next Friday (March 8th).
    Best,
    Ludovica
    —
    Ludovica Durst, Ph. D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. +39 06 8440801
    Fax +39 06 85344833
    —
    Full post:
    https://www.rd-alliance.org/group/blockchain-applications-health-wg/post…
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post:
    https://www.rd-alliance.org/mailinglist/unsubscribe/62341

  • March 19, 2019 at 5:10 pm in reply to: #130675

    Ludovica Durst
    Member

    Dear all
    here you are the gotomeeting details for our TC:
    RDA – Blockchain in health data WG
    Thu, Mar 21, 2019 6:00 PM – 7:00 PM CET
    Please join my meeting from your computer, tablet or smartphone.
    https://global.gotomeeting.com/join/939962461
    You can also dial in using your phone.
    (For supported devices, tap a one-touch number below to join instantly.)
    United States: +1 (571) 317-3129
    – One-touch: tel:+15713173129,,939962461#
    Access Code: 939-962-461
    More phone numbers:
    (For supported devices, tap a one-touch number below to join instantly.)
    Australia: +61 2 9087 3604
    – One-touch: tel:+61290873604,,939962461#
    Austria: +43 7 2081 5427
    – One-touch: tel:+43720815427,,939962461#
    Belgium: +32 28 93 7018
    – One-touch: tel:+3228937018,,939962461#
    Canada: +1 (647) 497-9391
    – One-touch: tel:+16474979391,,939962461#
    Denmark: +45 43 31 47 82
    – One-touch: tel:+4543314782,,939962461#
    Finland: +358 942 72 1060
    – One-touch: tel:+358942721060,,939962461#
    France: +33 170 950 594
    – One-touch: tel:+33170950594,,939962461#
    Germany: +49 692 5736 7317
    – One-touch: tel:+4969257367317,,939962461#
    Ireland: +353 15 360 728
    – One-touch: tel:+35315360728,,939962461#
    Italy: +39 0 247 92 13 01
    – One-touch: tel:+39247921301,,939962461#
    Netherlands: +31 207 941 377
    – One-touch: tel:+31207941377,,939962461#
    New Zealand: +64 9 280 6302
    – One-touch: tel:+6492806302,,939962461#
    Norway: +47 21 93 37 51
    – One-touch: tel:+4721933751,,939962461#
    Spain: +34 932 75 2004
    – One-touch: tel:+34932752004,,939962461#
    Sweden: +46 853 527 836
    – One-touch: tel:+46853527836,,939962461#
    Switzerland: +41 225 4599 78
    – One-touch: tel:+41225459978,,939962461#
    United Kingdom: +44 20 3713 5028
    – One-touch: tel:+442037135028,,939962461
    —– Messaggio originale —–
    Da: “l durst”
    A: “bc-app-health”
    Cc: “m demalde”
    Inviato: Domenica, 17 marzo 2019 19:45:08
    Oggetto: Re: [bc-app-health] Doodle and TC RDA Blockchain app in health WG
    Dear Blockchain Application in Health WG members
    as per the doodle outcomes, our TC will take place Thursday 21 March at 6 pm CET.
    A gotomeeting invite will follow.
    Thank you and hope to talk to you on the TC!
    best regards
    Ludovica
    —– Messaggio originale —–
    Da: “l durst”
    A: “bc-app-health”
    Cc: “m demalde”
    Inviato: Martedì, 5 marzo 2019 18:05:59
    Oggetto: [bc-app-health] Doodle and TC RDA Blockchain app in health WG
    Dear all
    on behalf of the Blockchain Applications in Health WG
    we’re happy to inform you that our Blockchain Applications in Health WG session at Philadelphia P13 is scheduled for Thursday 4 April at 9.00:
    https://www.rd-alliance.org/rda-13th-plenary-programme, breakout 7.
    To get prepared for the session, we’d like to discuss with you some of the issues and objectives set forth in the meeting agenda:
    https://rd-alliance.org/wg-blockchain-applications-health-rda-13th-plena…
    Here comes a doodle to hopefully find a suitable option for the most of us, everybody is welcome to join the TC, regardless the participation to the Plenary.
    https://doodle.com/poll/smeeh7qw3s48khri
    Please, fill in your preferences no later than next Friday (March 8th).
    Best,
    Ludovica
    —
    Ludovica Durst, Ph. D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. +39 06 8440801
    Fax +39 06 85344833
    —
    Full post:
    https://www.rd-alliance.org/group/blockchain-applications-health-wg/post…
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post:
    https://www.rd-alliance.org/mailinglist/unsubscribe/62341

  • March 17, 2019 at 6:45 pm in reply to: #130680

    Ludovica Durst
    Member

    Dear Blockchain Application in Health WG members
    as per the doodle outcomes, our TC will take place Thursday 21 March at 6 pm CET.
    A gotomeeting invite will follow.
    Thank you and hope to talk to you on the TC!
    best regards
    Ludovica
    —– Messaggio originale —–
    Da: “l durst”
    A: “bc-app-health”
    Cc: “m demalde”
    Inviato: Martedì, 5 marzo 2019 18:05:59
    Oggetto: [bc-app-health] Doodle and TC RDA Blockchain app in health WG
    Dear all
    on behalf of the Blockchain Applications in Health WG
    we’re happy to inform you that our Blockchain Applications in Health WG session at Philadelphia P13 is scheduled for Thursday 4 April at 9.00:
    https://www.rd-alliance.org/rda-13th-plenary-programme, breakout 7.
    To get prepared for the session, we’d like to discuss with you some of the issues and objectives set forth in the meeting agenda:
    https://rd-alliance.org/wg-blockchain-applications-health-rda-13th-plena…
    Here comes a doodle to hopefully find a suitable option for the most of us, everybody is welcome to join the TC, regardless the participation to the Plenary.
    https://doodle.com/poll/smeeh7qw3s48khri
    Please, fill in your preferences no later than next Friday (March 8th).
    Best,
    Ludovica
    —
    Ludovica Durst, Ph. D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. +39 06 8440801
    Fax +39 06 85344833
    —
    Full post:
    https://www.rd-alliance.org/group/blockchain-applications-health-wg/post…
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post:
    https://www.rd-alliance.org/mailinglist/unsubscribe/62341

  • May 28, 2018 at 5:32 pm in reply to: #131077

    Ludovica Durst
    Member

    Dear all, the reviewed case statement has been sent to TAB. Thank you for your help! We will keep you updated on the approval procedure. 

  • November 21, 2017 at 7:30 pm in reply to: #131386

    Ludovica Durst
    Member

    Dear all
    during call 2 we will take the chance to update you also on the task on diverging trends in privacy regulation and the activity on ethical assessment procedures we’re planning to deal with.
    For those unable to attend the call but who are interested in the topic, please contact us via mail!
    —– Messaggio originale —–
    Da: “Leslie McIntosh Borrelli”
    A: “healthdata”
    Inviato: Lunedì, 20 novembre 2017 16:33:40
    Oggetto: [healthdata] Health Data IG – Call last week in November
    Greetings Health Data IG,
    We have been working on the a couple of things since Montreal as was noted in the recent announcement. There will be a call to discuss the progress and get feedback on one part – The RDA Adoption and Training Guide for Reproducible Data Service Workflows
    Case Statement: https://docs.google.com/document/d/1qQD-E8D-Qno8y_XrSOQ2O6sZEaT2_2r3pIMj…
    Workflow: https://docs.google.com/spreadsheets/d/1-uSocVpju4_fBcMDBgW2LxG3EpvBNRed…
    If you are unable to attend the call but would like to participate, please add your comments to the documents. We look forward to moving forward on this work.
    Call-in Information
    Health Data IG – Workflows Call 1
    Wed, Nov 29, 2017 10:00 PM – 11:00 PM GMT
    Please join my meeting from your computer, tablet or smartphone.
    https://global.gotomeeting.com/join/180970781
    Access Code: 180-970-781
    Health Data IG – Workflows Call 2
    Thu, Nov 30, 2017 2:00 PM – 3:00 PM GMT
    Please join my meeting from your computer, tablet or smartphone.
    https://global.gotomeeting.com/join/521002813
    You can also dial in using your phone.
    United States: +1 (312) 757-3129
    Access Code: 521-002-813
    More phone numbers
    Australia: +61 2 9087 3604
    Austria: +43 1 2530 22520
    Belgium: +32 28 93 7018
    Canada: +1 (647) 497-9350
    Denmark: +45 32 72 03 82
    Finland: +358 923 17 0568
    France: +33 170 950 594
    Germany: +49 692 5736 7317
    Ireland: +353 15 360 728
    Italy: +39 0 247 92 13 01
    Netherlands: +31 207 941 377
    New Zealand: +64 9 280 6302
    Norway: +47 21 93 37 51
    Spain: +34 932 75 2004
    Sweden: +46 853 527 836
    Switzerland: +41 225 4599 78
    United Kingdom: +44 330 221 0088
    First GoToMeeting? Let’s do a quick system check:https://link.gotomeeting.com/system-check
    Leslie McIntosh, PhD, MPH
    Executive Director
    Research Data Alliance – US
    Rensselaer Polytechnic Institute
    Amos Eaton 210
    110 8th Street, Troy, NY
    314.200.5838 (Google voice)
    —
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  • March 30, 2017 at 2:21 pm in reply to: #131935

    Ludovica Durst
    Member

    Dear all
    I’ve been trying to connect via mobile but it’s not working, I apologize.
    Hope to see you in Barcelona next week in our group’s session!
    Best, Ludovica
    —– Messaggio originale —–
    Da: mcintold
    A: ***@***.***-groups.org
    Inviato: Thu, 30 Mar 2017 15:34:11 +0200 (CEST)
    Oggetto: [healthdata] Re: Health Data RDA – Visualisation
    Greetings,
    I am looking forward to our follow-up meeting (in 30 minutes for the first meeting). Please note that Doodle has the time correct and is corrected below.
    The agenda includes:
    * An overview of the work to date
    * Adding individuals who would like to contribute to the map
    * Reviewing the categories and contents
    If you would like to look at the current state of the simplified visualization, please see: https://www.mindmeister.com/873929998?t=1x86Y9RMa5
    Cheers,
    Leslie
    The follow-up meeting for “Health Data RDA – Visualisation”will be:
    Thursday, March 30, 2017 9:00 (CDT-US) / 16:00 (CET-Europe)
    and
    Thursday, March 30, 2017 17:00 (CDT-US) / Friday, March 31, 2017 9:00 (AEDT – Australia)
    This link should work for both meetings:
    https://global.gotomeeting.com/join/765004669
    Dial-in phone numbers:
    Access Code: 765-004-669
    United States: +1 (646) 749-3117
    Australia: +61 2 8355 1038
    Austria: +43 1 2530 22500
    Belgium: +32 27 00 6375
    Canada: +1 (647) 497-9373
    Denmark: +45 32 72 03 69
    Finland: +358 972 52 2971
    France: +33 170 950 590
    Germany: +49 69 5880 7802 72
    Ireland: +353 15 621 583
    Italy: +39 0 230 57 81 80
    Netherlands: +31 707 709 520
    New Zealand: +64 9 282 9510
    Norway: +47 21 93 37 37
    Spain: +34 932 75 1230
    Sweden: +46 775 757 471
    Switzerland: +41 445 1124 85
    United Kingdom: +44 20 3713 5011
    I look forward to the discussion.
    Cheers,
    Leslie
    Leslie D. McIntosh, PhD, MPH
    Assistant Professor
    Washington University in St. Louis
    660 S. Euclid Box 8118
    St. Louis, MO 63110
    314.747.7959 (O) or 314.200.5838 (C)
    ________________________________
    The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail.
    —
    Ludovica Durst, Ph. D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. +39 06 8440801
    Fax +39 06 85344833

  • March 15, 2017 at 8:55 am in reply to: #131999

    Ludovica Durst
    Member

    Dear Dewayne
    I’m not sure this is the best group for your project, or if the Geospatial IG would suit you better.
    Anyway, if you can tell us better how to support your fellowship we’ll try to help you.
    Best regards
    Ludovica
    —– Messaggio originale —–
    Da: “GeoEducator”
    A: “healthdata”
    Inviato: Martedì, 14 marzo 2017 20:13:34
    Oggetto: [healthdata] Greetings
    My name is Dewayne Branch.
    I need a letter of support from this group as I am submitting my fellowship
    application where I want to be a part of this group and the health data
    group.
    I want to become an expert in linking environmental data, health data from
    sensors, drones, or any other disparate systems for a data intelligence or
    data fusion that can lead to better predictive analytics or at least set-up
    a virtual geospatial library/data center that could support such.
    Attached is my CV. How do I get such a letter by tomorrow’s fellowship
    deadline?
    Thanks,
    Dr.. Branch
    Attached files:
    [ https://www.rd-alliance.org/sites/default/files/DeWayne_BranchCVBranchtc… | DeWayne_BranchCVBranchtcm3g_(2).pdf ]
    —
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  • March 1, 2017 at 3:39 pm in reply to: #132032

    Ludovica Durst
    Member

    Dear Joe
    thank you for your interest in our IG, we would be happy to know more about your project.
    P9 in Barcelona will be a great occasion to meet and discuss converging interests and possible collaboration, and we look forward to seeing you in our sessions.
    If you registered to our interest group you will be also noticed also about possible TCs we’re planning to have before Barcelona, where you could introduce yourself and your research interests to some of the group members.
    Anyway we may also organise a talk in the next days if you need to discuss something more specific, in case please let me know.
    Kind regards
    Ludovica
    —– Messaggio originale —–
    Da: “jlwebb”
    A: “healthdata”
    Inviato: Mercoledì, 1 marzo 2017 15:51:07
    Oggetto: [healthdata] 2017 Call for RDA Fellows
    Good morning Health Data Leadership:,
    My name is Joe Webb and I am a doctoral student at Iowa State University in
    an integrative PhD program applying Bioinformatic techniques to Big Data
    across multiple disciplines (Genetics, Neuroimaging, Metabolomics,
    Proteomics, Clinical Health Data, Psychological Cognitive Data).. I
    recently joined the Research Data Alliance because I primarily work with
    big health data to understand genetic underpinnings of neurodegenerative
    diseases such as Alzheimer’s and Parkinson’s disease. In addition to
    research, I work with national legislators in Washington DC and Iowa
    legislators to advocate for Big Data research initiatives and would love to
    know how I can promote the RDA while I am at the nation’s capital in March.
    I want to become more involved in the Health Data interest group and I am
    very interested in attending the upcoming conference in Barcelona. Are
    there any volunteer opportunities that I may become involved with to serve
    the RDA and our interest group?
    After exploring more ways to become involved with the RDA, I discovered the
    call for US RDA fellowship applications. I will be submitting an
    application and I would love to discuss project proposal ideas with you
    that could assist the Health data interest group in achieving our mission
    while enhancing the big data research infrastructure here at Iowa State
    University. My training stems from a strong background in Biostatistics,
    Biochemistry and Software Engineering for Big Data analysis. This training
    makes me uniquely suited to apply for the Data Share Program Fellowship to
    extend the collaborative projects that our lab is working on with other
    scientists in the US, United Kingdom and Australia.
    For my application, I would love to propose a collaborative project to
    bolster the big data initiatives I have been helping establish here at Iowa
    state University that would simultaneously facilitate our interest group’s
    progress toward our goals. As a member of the Midwest Big Data Hub, I am
    developing Big Data educational workshops for hundreds of high school
    students and undergraduates across Iowa and would love to utilize these
    resources to develop integrative projects through the Research Data
    Alliance.
    If anyone would be available to discuss potential ideas or has any
    questions, comments or concerns, please do not hesitate to contact me via
    email at ***@***.***.
    I would appreciate hearing from you and discussing this opportunity
    further. Thank you for your time and I hope that you have a fantastic day!
    Sincerely,
    Joe Webb
    —
    —
    Joseph Webb
    Iowa State University | Nutrition, Neuroscience & Statistics
    641-414-3192 | ***@***.***
    —
    Full post: https://www.rd-alliance.org/group/health-data/post/2017-call-rda-fellows
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  • February 27, 2017 at 10:22 am in reply to: #132052

    Ludovica Durst
    Member

    Dear Lorinette
    thank you for your interest in our IG and for sharing your project with us. We would like to know more!
    If you’re planning to attend RDA P9 in Barcelona that will be a great occasion to meet and introduce you to the group’s activities, as much as to know more in detail about your project.
    Anyway we may also have a talk about it in the next TC we’re planning to have in March, to focus a little bit more again on the “mapping the domain” activity, and that Leslie is kindly helping to organise. Let’s use the TC as a first occasion to get in touch, please coordinate with Leslie and us to start finding suitable dates before setting a doodle.
    Kind regards
    Ludovica
    —– Messaggio originale —–
    Da: “LorinetteW”
    A: “healthdata”
    Inviato: Domenica, 26 febbraio 2017 5:58:01
    Oggetto: [healthdata] 2017 Data Share Program Fellowship Applicant
    Dear Health Data IG Leadership:
    I am a PhD student studying Health Outcomes Research at Saint Louis
    University with research interests in utilizing social media data for
    predicting patient reported outcomes such as Health-related Quality of Life
    (HrQoL). HrQoL, a concept that embodies the patients’ perception of their
    own health, is a dynamic and robust measure for evaluating disease burden
    and the quality of health care overall. Traditionally, these measure are
    provided via surveys and are expensive to implement. However, patients
    express similar and arguably more detailed information about how they
    perceive their health on Social media, a much cheaper and more accessible
    potential source of patient reported outcomes. Harnessing the power of
    machine learning and natural language processing provides an opportunity to
    explore social media data for its ability to reliably predict HrQoL and
    much more.
    After speaking about this research interest with my mentor, Dr. Leslie
    McIntosh, I was introduced to the Data Share Program. My training in
    Epidemiology,
    Biostatistics, Health Outcomes Research, and Data Science places me in a
    unique position to further explore the validity of social media data as a
    reliable source of HrQoL information. The Data Share Program Fellowship is
    the perfect opportunity for me (with collaboration from researchers across
    the world) to examine the advantages, shortcomings, and potential
    recommendations for this type of research in addition to working to solve/
    discuss some of its inherent problems, such as those relating to bias and
    security.
    I am optimistic that you are excited about social media data as an option
    for making medicine more personalized and patient-centered. I hope that you
    find my project to be one that you would like to lend your support.
    At your availability, I would like to learn more about this IG and discuss
    my proposed project.
    I hope to hear from you soon.
    Sincerely,
    Lorinette Wirth
    —
    *Lorinette S. D. Wirth, MPH | **Epidemiology/Biostatistics*
    *Doctoral Student | **Public Health Studies – Health Outcomes Research*
    *Saint Louis University Center for Outcomes Research (SLUCOR)*
    *Saint Louis University*
    *Email: ***@***.*** *
    Add me on LinkedIn
    “To be nobody but yourself in a world which is doing its best, night and
    day, to make you everybody else means to fight the hardest battle which any
    human being can fight; and never stop fighting.”
    ee. cummings
    “Just do it!”
    Nike
    —
    Full post: https://www.rd-alliance.org/group/health-data/post/2017-data-share-progr…
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  • February 17, 2017 at 4:04 pm in reply to: #132073

    Ludovica Durst
    Member

    Dear all
    according to the doodle the proposed TC will take place next tuesday, 21st february, at 5pm CET (4pm GMT/UTC).
    Gotomeeting details will follow.
    Hope you can join us!
    Best regards
    —– Messaggio originale —–
    Da: “l durst”
    A: “healthdata”
    Inviato: Giovedì, 9 febbraio 2017 23:01:46
    Oggetto: [healthdata] Health Data IG P9 Barcelona – next TC
    Dear all,
    As we agreed during our 1st TC last December, here we come to propose another TC in view of the forthcoming P9 in Barcelona.
    First of all, we’re pleased to inform you that all the three sessions we talked about in the last TC were submitted and approved.
    This means that we are going to have our Health Data Interest Group session, titled “Meaningful Health Data for Research and for Industry”, on THUR 6th APRIL, 14.00-15.30;
    Secondly, we will have a joint session IG Big Data and IG Health Data, which will serve as Exploration Meeting (Morris Riedel as reference person), on THUR 6th APRIL, 11.30-13.00;
    Thirdly, we will have a BoF session on “Making use of Blockchain in dealing with Health Data” on FRI 7th APRIL, 9.00-10.30.
    In the meanwhile, Leslie McIntosh has been devoting some remarkable effort to starting the “mapping the domain” activity, which emerged as a specific field of interest during the TC we had in December. Leslie has very kindly taken the initiative of organizing two TCs (on EU-friendly and Australia-friendly times) some of us were able to join in January.
    So, our next proposed HD-IG TC will focus on:
    • Health Data IG involvement in Barcelona
    • Mapping the domain: next steps
    Please, feel also free to submit other topics of discussion for this TC agenda.
    The doodle poll will be available until Friday, 17th February, at this link:
    http://doodle.com/poll/5fs69w758fbn745m.
    Thank you, best regards
    —
    Ludovica Durst, Ph. D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. +39 06 8440801
    Fax +39 06 85344833
    —
    Full post:
    https://www.rd-alliance.org/group/health-data/post/health-data-ig-p9-bar…
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  • June 22, 2016 at 5:10 pm in reply to: #132897

    Ludovica Durst
    Member

    Dear Chang,
    I’m really sorry for my late reply but we’ve been overwhelmed by the submission of a project proposal and I couldn’t think about any other things!
    Thank you very much for your kind reply, and for the interest you showed about being part of the process of this new Interest Group on Health Data. I’ll be back to you next week with further details on our initiatives, possibly looking for your participation at the meeting in Denver next September (the date proposed for our session is saturday 17th Sept. in the morning). Your involvement in the process would really add great value to our ideas and intentions.
    Best regards
    Ludovica
    —– Messaggio originale —–
    Da: “Anthony Chang”
    A: “ludolynkeus” , ***@***.***-groups.org
    Cc: ***@***.***-innovation.gr, “Laura Beken” , “Fotis Karagiannis” , “Edwin Morley-Fletcher” , “Spyro Mousses” , “Spyro Mousses”
    Inviato: Venerdì, 10 giugno 2016 19:42:26
    Oggetto: Re: [healthdata] RDA Health Data Interest Group – Revised Charter
    Dear Ludovica,
    Good to meet you virtually!
    As Edwin may have informed you, I am a pediatric cardiologist with a
    strong interest in data science and AI. I am graduating from the
    Stanford School of Medicine Masters program in Data Science this week
    and will continue my work in AI there. I am also the founder of the
    international Society for Pediatric Innovation (iSPI) and we have a
    working group on data and data sharing as well as a scientific committee
    on artificial intelligence. We already have 28 charter members and more
    will be joining. Also, I am organizing a course as well as a textbook in
    data science and AI in healthcare and medicine.
    I am very interested in being part of this process you have elucidated.
    Lets chat about how we can converge!
    Best,
    ACC
    Anthony C. Chang, MD, MBA, MPH
    Chief Intelligence and Innovation Officer
    Medical Director, The Sharon Disney Lund Medical Intelligence and
    Innovation Institute (MI3)
    Children’s Hospital of Orange County
    1201 West La Veta
    Orange, CA 92868
    T: (714) 509-7576 F: (714) 509-4962
    Coming Soon!
    The First International Symposium on Medical Intelligence: Analytics
    and Algorithms, Big Data, Cloud and Cognitive Computing, and Deep
    Learning in Medicine and Healthcare.
    >>> ludolynkeus 5/31/2016 2:59 AM >>>
    Dear all,
    On behalf of the co-Chairs of the proposed Health Data Interest Group
    (HDIG), please find some updates on the group’s work after the BoF
    session held at the Tokyo plenary on 1st March 2016.
    This meeting followed a BoF held in Paris at P6, in September 2015,
    where the HDIG was encouraged to go for the RDA formal submission and
    review process, and a first TAB review which led to an updated charter
    presented during the BoF in Tokyo.
    The session in Tokyo was also attended by the co-Chairs and/or members
    from other groups with potential link with the HDIG, such as Data
    Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
    Implications of Research Data Sets WG, who were warmly invited to join
    the session to discuss potential overlaps and collaborations.
    We are now looking forward to complete the review process by the end of
    June and to plan for a first meeting of the newly-instituted HDIG at the
    8th RDA Plenary in Denver, in September 2016.
    To succeed in the review process and actively engage in the group, some
    actions are needed: first of all, an updated charter has been prepared
    taking into account the latest recommendations and comments received
    during the community and the TAB review. This includes a selection of
    priority topics the IG will start to focus on, and a major involvement
    of worldwide participants in the group, as much as participants with
    clinical expertise.
    Please, have a look at the revised Charter, now available at
    https://rd-alliance.org/group/health-data/case-statement/health-data.html.
    We would very much appreciate receiving any comments, or suggestions of
    editing the content within the end of August 2016, as well as further
    indications of potentially interested partners, which it would be
    worthwhile to try and engage.
    We are also submitting a session proposal for the 8th RDA Plenary in
    Denver, in September 2016, where we would like to invite you.
    Preliminary information on the event can be found at
    https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
    With best regards,
    Ludovica Durst, Ph.D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. (+39)06 8440801
    Fax (+39)06 85344833
    —
    Full post:
    https://rd-alliance.org/group/health-data/post/rda-health-data-interest-…
    Manage my subscriptions: https://rd-alliance.org/mailinglist
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    https://rd-alliance.org/mailinglist/unsubscribe/52724
    Dear all,
    On behalf of the co-Chairs of the proposed Health Data Interest Group
    (HDIG), please find some updates on the group’s work after the BoF
    session held at the Tokyo plenary on 1st March 2016.
    This meeting followed a BoF held in Paris at P6, in September 2015,
    where the HDIG was encouraged to go for the RDA formal submission and
    review process, and a first TAB review which led to an updated charter
    presented during the BoF in Tokyo.
    The session in Tokyo was also attended by the co-Chairs and/or members
    from other groups with potential link with the HDIG, such as Data
    Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
    Implications of Research Data Sets WG, who were warmly invited to join
    the session to discuss potential overlaps and collaborations.
    We are now looking forward to complete the review process by the end of
    June and to plan for a first meeting of the newly-instituted HDIG at the
    8th RDA Plenary in Denver, in September 2016.
    To succeed in the review process and actively engage in the group, some
    actions are needed: first of all, an updated charter has been prepared
    taking into account the latest recommendations and comments received
    during the community and the TAB review. This includes a selection of
    priority topics the IG will start to focus on, and a major involvement
    of worldwide participants in the group, as much as participants with
    clinical expertise.
    Please, have a look at the revised Charter, now available at
    https://rd-alliance.org/group/health-data/case-statement/health-data.html.
    We would very much appreciate receiving any comments, or suggestions of
    editing the content within the end of August 2016, as well as further
    indications of potentially interested partners, which it would be
    worthwhile to try and engage.
    We are also submitting a session proposal for the 8th RDA Plenary in
    Denver, in September 2016, where we would like to invite you.
    Preliminary information on the event can be found at
    https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
    With best regards,
    Ludovica Durst, Ph.D.
    ***@***.***
    Lynkeus S.r.l.
    Via Livenza 6, 00198 Roma
    Tel. (+39)06 8440801
    Fax (+39)06 85344833
    —
    Full post:
    https://rd-alliance.org/group/health-data/post/rda-health-data-interest-…
    Manage my subscriptions: https://rd-alliance.org/mailinglist
    Stop emails for this post:
    https://rd-alliance.org/mailinglist/unsubscribe/52724
    CHOCLX-MGSM made the following annotations
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