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June 20, 2022 at 2:21 pm in reply to: #129232

Celia Alvarez-Romero
Member

Dear all,
This is a kind reminder to invite you to the session we are organizing
at the RDA 19th Virtual Plenary Meeting, part of the International Data
Week

to present the results of the WG on Raising FAIRness in health data and
health research performing organisations
.
In order to share knowledge and enrich the results of this RDA WG, we
ask for your feedback before and during RDA Plenary 19. Our session
*”Finalising guidelines for FAIR adoption in health research performing
organisations” *is scheduled in Breakout 4: *Tuesday, 21 June 2022 at
23:30 – 01:00 UTC*. (PLEASE NOTE: the session starts at 23:30 on 21 June
and ends at 01:00 next day, 22 June).
We share with you links to documents where we have collected the results
of these last years. Please note that these are *drafts*, and that the
aim is to complete them with your feedback:
* Landscape analysis

on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment

on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey

on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs

for implementing FAIR data policy in health research.
Thank you in advance!
We look forward to seeing you at the Plenary.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
June 20, 2022 at 2:21 pm in reply to: #129233

Celia Alvarez-Romero
Member

Dear all,
This is a kind reminder to invite you to the session we are organizing
at the RDA 19th Virtual Plenary Meeting, part of the International Data
Week

to present the results of the WG on Raising FAIRness in health data and
health research performing organisations
.
In order to share knowledge and enrich the results of this RDA WG, we
ask for your feedback before and during RDA Plenary 19. Our session
*”Finalising guidelines for FAIR adoption in health research performing
organisations” *is scheduled in Breakout 4: *Tuesday, 21 June 2022 at
23:30 – 01:00 UTC*. (PLEASE NOTE: the session starts at 23:30 on 21 June
and ends at 01:00 next day, 22 June).
We share with you links to documents where we have collected the results
of these last years. Please note that these are *drafts*, and that the
aim is to complete them with your feedback:
* Landscape analysis

on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment

on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey

on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs

for implementing FAIR data policy in health research.
Thank you in advance!
We look forward to seeing you at the Plenary.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
June 20, 2022 at 2:21 pm in reply to: #129234

Celia Alvarez-Romero
Member

Dear all,
This is a kind reminder to invite you to the session we are organizing
at the RDA 19th Virtual Plenary Meeting, part of the International Data
Week

to present the results of the WG on Raising FAIRness in health data and
health research performing organisations
.
In order to share knowledge and enrich the results of this RDA WG, we
ask for your feedback before and during RDA Plenary 19. Our session
*”Finalising guidelines for FAIR adoption in health research performing
organisations” *is scheduled in Breakout 4: *Tuesday, 21 June 2022 at
23:30 – 01:00 UTC*. (PLEASE NOTE: the session starts at 23:30 on 21 June
and ends at 01:00 next day, 22 June).
We share with you links to documents where we have collected the results
of these last years. Please note that these are *drafts*, and that the
aim is to complete them with your feedback:
* Landscape analysis

on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment

on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey

on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs

for implementing FAIR data policy in health research.
Thank you in advance!
We look forward to seeing you at the Plenary.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
June 20, 2022 at 2:21 pm in reply to: #129235

Celia Alvarez-Romero
Member

Dear all,
This is a kind reminder to invite you to the session we are organizing
at the RDA 19th Virtual Plenary Meeting, part of the International Data
Week

to present the results of the WG on Raising FAIRness in health data and
health research performing organisations
.
In order to share knowledge and enrich the results of this RDA WG, we
ask for your feedback before and during RDA Plenary 19. Our session
*”Finalising guidelines for FAIR adoption in health research performing
organisations” *is scheduled in Breakout 4: *Tuesday, 21 June 2022 at
23:30 – 01:00 UTC*. (PLEASE NOTE: the session starts at 23:30 on 21 June
and ends at 01:00 next day, 22 June).
We share with you links to documents where we have collected the results
of these last years. Please note that these are *drafts*, and that the
aim is to complete them with your feedback:
* Landscape analysis

on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment

on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey

on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs

for implementing FAIR data policy in health research.
Thank you in advance!
We look forward to seeing you at the Plenary.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
June 20, 2022 at 2:20 pm in reply to: #129236

Celia Alvarez-Romero
Member

Dear all,
This is a kind reminder to invite you to the session we are organizing
at the RDA 19th Virtual Plenary Meeting, part of the International Data
Week

to present the results of the WG on Raising FAIRness in health data and
health research performing organisations
.
In order to share knowledge and enrich the results of this RDA WG, we
ask for your feedback before and during RDA Plenary 19. Our session
*”Finalising guidelines for FAIR adoption in health research performing
organisations” *is scheduled in Breakout 4: *Tuesday, 21 June 2022 at
23:30 – 01:00 UTC*. (PLEASE NOTE: the session starts at 23:30 on 21 June
and ends at 01:00 next day, 22 June).
We share with you links to documents where we have collected the results
of these last years. Please note that these are *drafts*, and that the
aim is to complete them with your feedback:
* Landscape analysis

on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment

on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey

on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs

for implementing FAIR data policy in health research.
Thank you in advance!
We look forward to seeing you at the Plenary.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129305

Celia Alvarez-Romero
Member

Dear WG-HRPO members,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129306

Celia Alvarez-Romero
Member

Dear WG-HRPO members,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129307

Celia Alvarez-Romero
Member

Dear WG-HRPO members,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129308

Celia Alvarez-Romero
Member

Dear WG-HRPO members,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129309

Celia Alvarez-Romero
Member

Dear WG-HRPO members,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129310

Celia Alvarez-Romero
Member

Dear Reproducible Health Data Services WG,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129311

Celia Alvarez-Romero
Member

Dear Reproducible Health Data Services WG,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129312

Celia Alvarez-Romero
Member

Dear Reproducible Health Data Services WG,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129313

Celia Alvarez-Romero
Member

Dear Reproducible Health Data Services WG,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
January 17, 2022 at 2:13 pm in reply to: #129314

Celia Alvarez-Romero
Member

Dear Reproducible Health Data Services WG,
First of all we hope this email finds you well.
We would like to ask you for your opinion on *data sharing and FAIR Data
Policies by your country and research funders*, because we really
consider that the information that you can provide us is important to
take it into account in an analysis we are doing in the RDA WG on
Raising FAIRness in health data and health research performing
organisations
.
For this purpose, we have designed the following survey, which will only
take a few minutes: https://www.surveymonkey.com/r/H7KRZQT
Please, could you help us to get results in our study?
Sorry if you have already completed this survey, in that case please
ignore the request in this email and help us share the survey!
Thank you in advance.
Best regards.
Celia on behalf of the Co-Chairs
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*
Author

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