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A shared understanding of Sensitive Data: an update on current progress and looking to future work.

  • Creator
    Discussion
  • #134017

    Collaborative meeting notes: https://docs.google.com/document/d/1kU77ZRifd-x83TlrmSv0qESQa3HaHcE8lWZj…
     

    5 Minutes: Introduction and context setting

    15 Minutes: Invited presentation from Susheel Varma

    10 Minute: Discussion with presenters and community.

    50  Minute: Group activities and review of the vocabularies work to date 

    5 Minute Update on status of the survey data

    10 minute Summary of current vocabulary work.

    30 Minute Group activity on developing Sensitive Data Glossary

    5 Minute discussion of next steps and outputs relating to this work 

    5 minute wrap up.

    Additional links to informative material
    A living list of resources in our Wiki
    Zenodo community to which we are adding resources produced by our IG
    Previous session at RDA18
    Poster from RDA 18
    Previous session at RDA17
    Session report from RDA17
    RDA17 poster
    Previous Community Meeting Notes
    Charter
    RDA Principles

    Are you willing to hold your session at multiple times to accommodate various time zones?
    Yes

    Avoid conflict with the following group (1)
    Social Dynamics of Data Interoperability IG

    Avoid conflict with the following group (3)
    Ethics and Social Aspects of Data IG

    Contact for group (email)
    kristal.spreadborough@unimelb.edu.au

    Group chair serving as contact person
    Kristal Spreadborough

    Meeting objectives
    This will be the first meeting of the Sensitive Data IG since our formal endorsement in January 2022. Previously we have engaged in an iterative process of 1) scoping the interest and needs of the RDA community, 2) examining the specific challenges associated with working with sensitive data, and 3) discussing possible future directions of the IG based on 1 and 2. In Q1 and Q2 of 2022, we have focused our work specifically on defining the vocabularies used to discuss sensitive data. At P19, we will continue this discussion, share preliminary findings, and plan next steps for IG outputs. 
     
     At this meeting, attendees will:

    Hear from invited presenters about their experience of developing a shared understanding of Sensitive Data. 

    Engage in open discussion about the group’s experiences of communicating about sensitive data.

    Hear about the progress of the Sensitive Data / Data Privacy Terms and Definitions survey

    Discuss the preliminary results of the survey

    Co-design the next steps for this piece of work and discuss direction of future work

    The meeting will feature 30 minutes of invited presentations followed by 10 minute discussion with the presenters and community. The remainder of the meeting will be reserved for group discussion/used as a working meeting. 
    We have one confirmed invited presenter for this meeting is Dr Susheel Varma, Director of Engineering, Health Data Research UK. Susheel will speak on the topic of shared understandings of sensitive data. We will confirm our second invited presenter over the next several months.

    Please indicate the breakout slot (s) that would suit your meeting
    Breakout 2, Breakout 4, Breakout 6, Breakout 7

    Please select breakout slot (s) for your (optional) second live session.
    Breakout 1, Breakout 3, Breakout 5

    Short Group Status
    Endorsed

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