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CLINICAL further comments from the website

  • Creator
    Discussion
  • #103960

    Natalie Harrower
    Participant

    Hi, I leave these with the Clinical group for consideration. Deadline 4pm UTC today thanks.
    From Phillipe Després
    The Imaging data section should encourage users to adopt good practices to report findings (e.g, outcomes, clinical variables, radiomic features), i.e. embedding these elements within DICOM Structured Reports along with the context of this information: who, when, how. This is well explained in this paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2666949/ This would allow for FAIRer, more robust imaging data (as opposed to recording outcomes and other clinical data in a separate, non-DICOM container).
    The sentence “A list of imaging standards and repositories is available in the RDA-endorsed FAIRsharing” could be misleading here as DICOM should be the only standard for any image-related data.
    _______
    Read our statement on ‘Playing Our Part during COVID-19’
    _________________
    Dr. Natalie Harrower
    Director, Digital Repository of Ireland
    Royal Irish Academy
    ***@***.*** | @natalieharrower
    http://www.dri.ie | @dri_ireland
    RDA COVID-19 Working Group
    European Commission FAIR data expert group
    European Open Science Cloud (EOSC) FAIR working group
    The Academy is subject to the FOI Act 2014, the Data Protection Acts 1988-2003 and 2018, GDPR (EU 2016/679) and S.I. No. 336/2011, EC Privacy & Electronic Communications Regulations. For further information see our website http://www.ria.ie/privacy-and-data-protection

  • Author
    Replies
  • #129752

    My comment on this, since I work also with several biomedical
    standardization group for imaging data.
    DICOM is good for certain types of data, but not all, that is why there
    are several others https://fairsharing.org/standards/?q=imaging
    This is a fact and I am not sure we can mention only DICOM.
    Kind regards,
    Susanna

  • #129751

    Dawei Lin
    Member

    Our group discussed this yesterday. We thought that it was better to leave out the sentence. Because the paragraph talks about DICOMweb, and the FAIRsharing sentence is a general statement. It does not quite fit. There are similar situations in our text. We thought that it might be useful to explain what is FAIRsharing and its significance in a central place. It is a valuable resource. We all like, but it might not be useful if the mentions are to direct users to the FAIRsharing website without being specific of what standards are relevant.
    Dawei
    From: SAS via RDA COVID19 Coordination
    Reply-To: “***@***.***
    Date: Thursday, June 11, 2020 at 6:48 AM
    To: “***@***.***” , RDA COVID19 Coordination
    Subject: Re: [rdacovid19-coordination] CLINICAL further comments from the website
    My comment on this, since I work also with several biomedical standardization group for imaging data.
    DICOM is good for certain types of data, but not all, that is why there are several others https://fairsharing.org/standards/?q=imaging
    This is a fact and I am not sure we can mention only DICOM.
    Kind regards,
    Susanna
    On 11/06/2020 10:21, natalieharrower via RDA COVID19 Coordination wrote:
    Hi, I leave these with the Clinical group for consideration. Deadline 4pm UTC today thanks.
    From Phillipe Després
    The Imaging data section should encourage users to adopt good practices to report findings (e.g, outcomes, clinical variables, radiomic features), i.e. embedding these elements within DICOM Structured Reports along with the context of this information: who, when, how. This is well explained in this paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2666949/ This would allow for FAIRer, more robust imaging data (as opposed to recording outcomes and other clinical data in a separate, non-DICOM container).
    The sentence “A list of imaging standards and repositories is available in the RDA-endorsed FAIRsharing” could be misleading here as DICOM should be the only standard for any image-related data.
    _______
    Read our statement on ‘Playing Our Part during COVID-19’
    _________________
    Dr. Natalie Harrower
    Director, Digital Repository of Ireland
    Royal Irish Academy
    ***@***.*** | @natalieharrower
    http://www.dri.ie | @dri_ireland
    RDA COVID-19 Working Group
    European Commission FAIR data expert group
    European Open Science Cloud (EOSC) FAIR working group
    The Academy is subject to the FOI Act 2014, the Data Protection Acts 1988-2003 and 2018, GDPR (EU 2016/679) and S.I. No. 336/2011, EC Privacy & Electronic Communications Regulations. For further information see our website http://www.ria.ie/privacy-and-data-protection

    Full post: https://www.rd-alliance.org/group/rda-covid19-coordination/post/clinical
    Manage my subscriptions: https://www.rd-alliance.org/mailinglist
    Stop emails for this post: https://www.rd-alliance.org/mailinglist/unsubscribe/70007

    For personal reasons I work on reduced hours until the end of August.
    Therefore I will respond more slowly than usual.
    Point of contact:
    for the group, ISA, STATO, FAIRplus and NIH CDFE -> ***@***.***
    for EOSC-Life and FAIRsharing -> ***@***.***

    Prof. Susanna-Assunta Sansone, PhD
    Associate Director, Oxford e-Research Centre
    Associate Professor, Dep of Engineering Science
    University of Oxford, UK
    Data Readiness Group:
    https://datareadiness.eng.ox.ac.uk
    ORCiD: 0000-0001-5306-5690
    skype: susanna-a.sansone
    twitter: @SusannaASansone

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