[Claire Austin]

Collaborative Notes Link: https://docs.google.com/document/d/152x_4GatlS3ogwDxqE4cZuvl5J-RFzbzEe0-…
 
1. What we did and why, and what we achieved.

How the group was set-up, different areas of expertise, structuring the output, how the writing sprints worked, how the final  document is being organised and audiences clarified.
Privacy and Instruments papers have been accepted in SSRN. Working paper on population level data sources is in the final stages for submission to a preprint server. 
This work has been successfully leveraged in the development of external initiatives and funding opportunities. 

2. Reflection on the strengths and weaknesses of the report. What is good about the report, what could be better?

This multi-disciplinary group helped us prepare comprehensive cross-cutting recommendations and guidelines.
Involvement of domain specific researchers would have resulted in additional perspectives.

3. What could/should we do next

How do we better identify adopters of the guidelines? Can we recruit adopters into the group to refine the recommendations and guidelines.

Can we collect and create case studies? Uses of the Recommendations & Guidelines  – provide examples and collect cases.

4. How should we organise to do that

Interactive session led by a few people to solidify the plans and identify volunteers to lead different parts of the work.

Is our commitment to updating this particular document or to facilitating larger discussions/dissemination of the outputs? Where do we focus our energies?

Additional links to informative material
RDA COVID-19 Data sharing in epidemiology https://doi.org/10.15497/rda00049
RDA COVID-19 Recommendations and guidelines for data sharing https://doi.org/10.15497/rda00052 
RDA COVID-19 Zotero Library https://doi.org/10.15497/rda00051
 

Are you willing to hold your session at multiple times to accommodate various time zones?
Yes

Avoid conflict with the following group (1)
RDA COVID-19

Avoid conflict with the following group (3)
DMP Common Standards WG

Group chair serving as contact person
Claire Austin

Meeting objectives
 
The RDA COVID-19 Epidemiology sub Working Group was set up in April, 2020. Its 83 members brought forward various global expertise to develop a body of work that comprises how epidemiology data informs response to a pandemic combined with guidelines and recommendations on data sharing under the present COVID-19 circumstances. The recommendations and guidelines are included in Chapter 5 of the overarching RDA-COVID19-WG report, and are aimed at helping policymakers and funders to maximise timely, quality data sharing in epidemiology and appropriate responses in such health emergencies.
In addition to recommendations and guidelines that focus on data sharing in epidemiology, additional supporting output, included a review and analysis of transparency in data sources, questionnaire instruments, privacy, a surveillance data model, Epi-TRACS for rapid detection and whole system response, a computable framework for public health and economic measures causal loops, and common data models and Epi-stack. 
Development  of the recommendations and guidelines was executed in an intense period of just over 5 weeks, with five iterative drafts, all of which were opened for public community comment. Work on the supporting output developed during this period continued following publication of the final recommendations and guidelines. The COVID-19 Epidemiology recommendations and guidelines found in Chapter 5 of the overarching report are also available in a standalone document together with the supporting output at DOI: https://doi.org/10.15497/rda00049

Other
Also pre-recorded shorts, as described above.

Please indicate the breakout slot (s) that would suit your meeting
Breakout 1, Breakout 2, Breakout 3, Breakout 4, Breakout 5, Breakout 6, Breakout 7, Breakout 8

Privacy Policy
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