[Celia Alvarez-Romero]

Dear FAIR Data Maturity Model WG members,
We would like to bring your attention to the RDA working group (more
details below) and invite you to consider adopting the guidelines and
recommendations for implementing FAIR policy in health research.
The new Research Data Alliance Working Group on Raising FAIRness in
health data and health research performing organisations (HRPOs)
was officially endorsed in August 2020 in order to provide HRPOs with a
set of clear and simple guidelines for implementing FAIR Data policy in
health research. For that purpose, we have worked on the documents below:
* Landscape analysis
on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment
on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey
on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs
for implementing FAIR data policy in health research.
We are currently submitting the results to the RDA Secretariat, and
request you to review the guidelines and adopting them at your
organization. We also solicit your feedback on the WG outputs,
especially the draft guidelines and would love to hear your
comments/suggestions.
Please, if you belong to a health research group or entity interested in
recommendations to define a FAIR data policy in your organization, reply
to this email and we will provide you with more information.
Thank you in advance.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
—
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*

Discussion