[Celia Alvarez-Romero]

Dear all,
We would like to encourage you to join the session of the WG on Raising
FAIRness in health data and health research performing organisations
,
which we are organising at the RDA 19th Virtual Plenary Meeting, part of
the International Data Week
.
This meeting will primarily demonstrate the work that has been
undertaken and showcase the outputs that have been generated in the form
of a set of clear guidelines for the FAIR implementation in health
research performing organisations (HRPOs), aiming to finalise the work
of this WG: *”Finalising guidelines for FAIR adoption in health research
performing organisations”*.
Our session is scheduled *Wednesday, 22 June 2022 at 00:00 – 01:00 UTC*.
_Meeting Agenda:_
1. Introduction and objectives of this meeting.
2. Background of the WG and results of previous meetings.
3. Findings from landscape analysis, impact assessment, and community
survey.
4. Presentation of guidelines.
5. Potential early adopters and next steps.
Please, let me add that registration is required. There are various
costs depending on whether you are a student or not. Link here
.
We hope it will be of interest to you, the Agenda is very tempting.
We look forward to seeing you at the Plenary, join us!
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
—
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*

Discussion

[Celia Alvarez-Romero]

Dear all,
This is a kind reminder to invite you to the session we are organizing
at the RDA 19th Virtual Plenary Meeting, part of the International Data
Week

to present the results of the WG on Raising FAIRness in health data and
health research performing organisations
.
In order to share knowledge and enrich the results of this RDA WG, we
ask for your feedback before and during RDA Plenary 19. Our session
*”Finalising guidelines for FAIR adoption in health research performing
organisations” *is scheduled in Breakout 4: *Tuesday, 21 June 2022 at
23:30 – 01:00 UTC*. (PLEASE NOTE: the session starts at 23:30 on 21 June
and ends at 01:00 next day, 22 June).
We share with you links to documents where we have collected the results
of these last years. Please note that these are *drafts*, and that the
aim is to complete them with your feedback:
* Landscape analysis

on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment

on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey

on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs

for implementing FAIR data policy in health research.
Thank you in advance!
We look forward to seeing you at the Plenary.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*

[Author]

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