[Jean Bernard Minster]

This is a very interesting article. It touches on almost all the sensitive issues.
An idea: Might we get one of the people mentioned —or someone else— as an invited speaker at IDW.
Bernard
http://www.politico.com/story/2016/01/joe-biden-cancer-researchers-rift-…

Discussion

[Simon Hodson]

So this relates to the previous suggestion of doing something on the recent NEJM editorial http://www.nejm.org/doi/full/10.1056/NEJMe1516564
It would be a good idea, in my view. A cluster of possible names as well as those listed in the piece.
John Wilbanks
Atul Butte
Michael Eisen
Ewan Birney
Best wishes,
Simon.
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[Mark Parsons]

Maybe we can get Joe Biden to speak. Seriously. I’ve met the US Chief Data Scientist who might be able to get on Biden’s radar. It’s a long shot but a worthy shot. Any other connections we can follow?
Regardless of the final participants. I thin a “great debate” on the ethics of data sharing would be marvelous.
cheers,
-m.
On Feb 1, 2016, at 1:17 PM, Simon Hodson wrote:
So this relates to the previous suggestion of doing something on the recent NEJM editorial http://www.nejm.org/doi/full/10.1056/NEJMe1516564
It would be a good idea, in my view. A cluster of possible names as well as those listed in the piece.
John Wilbanks
Atul Butte
Michael Eisen
Ewan Birney
Best wishes,
Simon.
___________________________
Nominations for SciDataCon 2016 Programme Committee, Deadline 7 February 2016: http://goo.gl/forms/VoIxPFLWS5
Call for Session Proposals, SciDataCon 2016, Deadline 14 February 2016: http://www.scidatacon.org/2016/
Data Science Journal, Call for Papers: Advances in Data Modelling and Knowledge Representation for Research Data, deadline 31 March 2016: http://datascience.codata.org/
Applications are now invited for the CODATA-RDA School of Research Data Science, hosted at the International Centre of Theoretical Physics, 1-12 August 2016: http://indico.ictp.it/event/7658/
For further news from the CODATA community, please consider joining the CODATA International list at http://lists.codata.org/mailman/listinfo/codata-international_lists.coda…
___________________________
Dr Simon Hodson | Executive Director CODATA | http://www.codata.org
E-Mail: ***@***.*** | Twitter: @simonhodson99 | Skype: simonhodson99
Blog: http://www.codata.org/blog
Diary: http://bit.ly/simonhodson99-calendar
Tel (Office): +33 1 45 25 04 96 | Tel (Cell): +33 6 86 30 42 59
CODATA (ICSU Committee on Data for Science and Technology),! 5 rue Auguste Vacquerie, 75016 Paris, FRANCE
On 1 Feb 2016, at 19:16, jbminster wrote:
This is a very interesting article. It touches on almost all the sensitive issues.
An idea: Might we get one of the people mentioned —or someone else— as an invited speaker at IDW.
Bernard
http://www.politico.com/story/2016/01/joe-biden-cancer-researchers-rift-…
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[Jean Bernard Minster]

I concur. People in charge should hear all sides. B.

[Mustapha Mokrane]

Dear Bernard, Mark, Simon, All,
Dear Claudia,
The NEJM op-ed and the
Politico paper on Biden’s cancer initiative

really
point to a necessary debate/dialogue on ethics of data sharing and in
particular for health data. This should be A—if not THE—central part of the
International Data Forum. It is a timely opportunity to add a human
dimension to data sharing and build empathy for the cause: human lives
depend on data sharing! This could also help change the still prevalent
perception that open data sharing is an exclusively technological challenge
or a nuisance added on top of researchers.
It would be fantastic to recruit Joe Biden as our keynote speaker for IDW.
Together with Mark and Sandy, we pitched the event to DJ Patil at AGU and
it could be a good follow up to contact him with this proposal. If we cant
get to him, the names suggested by Simon (John Wilbanks, Atul Butte,
Michael Eisen, and Ewan Birney) all seem good as well.
I am adding Claudia to the discussion as she might have additional
suggestions or connections. Claudia is invited to be on the IDW Programme
Committee and her expertise on health data sharing and ethics is very
relevant to the topic.
Best wishes.
Mustapha
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