[Ludovica Durst]

Dear all,
On behalf of the co-Chairs of the proposed Health Data Interest Group (HDIG), please find some updates on the group’s work after the BoF session held at the Tokyo plenary on 1st March 2016.
This meeting followed a BoF held in Paris at P6, in September 2015, where the HDIG was encouraged to go for the RDA formal submission and review process, and a first TAB review which led to an updated charter presented during the BoF in Tokyo.
The session in Tokyo was also attended by the co-Chairs and/or members from other groups with potential link with the HDIG, such as Data Security and Trust Working Group (WGDST) and the RDA/NISO Privacy Implications of Research Data Sets WG, who were warmly invited to join the session to discuss potential overlaps and collaborations.
We are now looking forward to complete the review process by the end of June and to plan for a first meeting of the newly-instituted HDIG at the 8th RDA Plenary in Denver, in September 2016.
To succeed in the review process and actively engage in the group, some actions are needed: first of all, an updated charter has been prepared taking into account the latest recommendations and comments received during the community and the TAB review. This includes a selection of priority topics the IG will start to focus on, and a major involvement of worldwide participants in the group, as much as participants with clinical expertise.
Please, have a look at the revised Charter, now available at https://rd-alliance.org/group/health-data/case-statement/health-data.html. We would very much appreciate receiving any comments, or suggestions of editing the content within the end of August 2016, as well as further indications of potentially interested partners, which it would be worthwhile to try and engage.
We are also submitting a session proposal for the 8th RDA Plenary in Denver, in September 2016, where we would like to invite you. Preliminary information on the event can be found at https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
With best regards,
Ludovica Durst, Ph.D.
***@***.***
Lynkeus S.r.l.
Via Livenza 6, 00198 Roma
Tel. (+39)06 8440801
Fax (+39)06 85344833

Discussion

[Anthony Chang]

Dear Ludovica,
Good to meet you virtually!
As Edwin may have informed you, I am a pediatric cardiologist with a
strong interest in data science and AI. I am graduating from the
Stanford School of Medicine Masters program in Data Science this week
and will continue my work in AI there. I am also the founder of the
international Society for Pediatric Innovation (iSPI) and we have a
working group on data and data sharing as well as a scientific committee
on artificial intelligence. We already have 28 charter members and more
will be joining. Also, I am organizing a course as well as a textbook in
data science and AI in healthcare and medicine.
I am very interested in being part of this process you have elucidated.
Lets chat about how we can converge!
Best,
ACC
Anthony C. Chang, MD, MBA, MPH
Chief Intelligence and Innovation Officer
Medical Director, The Sharon Disney Lund Medical Intelligence and
Innovation Institute (MI3)
Children’s Hospital of Orange County
1201 West La Veta
Orange, CA 92868
T: (714) 509-7576 F: (714) 509-4962
Coming Soon!
The First International Symposium on Medical Intelligence: Analytics
and Algorithms, Big Data, Cloud and Cognitive Computing, and Deep
Learning in Medicine and Healthcare.
>>> ludolynkeus 5/31/2016 2:59 AM >>>
Dear all,
On behalf of the co-Chairs of the proposed Health Data Interest Group
(HDIG), please find some updates on the group’s work after the BoF
session held at the Tokyo plenary on 1st March 2016.
This meeting followed a BoF held in Paris at P6, in September 2015,
where the HDIG was encouraged to go for the RDA formal submission and
review process, and a first TAB review which led to an updated charter
presented during the BoF in Tokyo.
The session in Tokyo was also attended by the co-Chairs and/or members
from other groups with potential link with the HDIG, such as Data
Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
Implications of Research Data Sets WG, who were warmly invited to join
the session to discuss potential overlaps and collaborations.
We are now looking forward to complete the review process by the end of
June and to plan for a first meeting of the newly-instituted HDIG at the
8th RDA Plenary in Denver, in September 2016.
To succeed in the review process and actively engage in the group, some
actions are needed: first of all, an updated charter has been prepared
taking into account the latest recommendations and comments received
during the community and the TAB review. This includes a selection of
priority topics the IG will start to focus on, and a major involvement
of worldwide participants in the group, as much as participants with
clinical expertise.
Please, have a look at the revised Charter, now available at
https://rd-alliance.org/group/health-data/case-statement/health-data.html.
We would very much appreciate receiving any comments, or suggestions of
editing the content within the end of August 2016, as well as further
indications of potentially interested partners, which it would be
worthwhile to try and engage.
We are also submitting a session proposal for the 8th RDA Plenary in
Denver, in September 2016, where we would like to invite you.
Preliminary information on the event can be found at
https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
With best regards,
Dear all,
On behalf of the co-Chairs of the proposed Health Data Interest Group
(HDIG), please find some updates on the group’s work after the BoF
session held at the Tokyo plenary on 1st March 2016.
This meeting followed a BoF held in Paris at P6, in September 2015,
where the HDIG was encouraged to go for the RDA formal submission and
review process, and a first TAB review which led to an updated charter
presented during the BoF in Tokyo.
The session in Tokyo was also attended by the co-Chairs and/or members
from other groups with potential link with the HDIG, such as Data
Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
Implications of Research Data Sets WG, who were warmly invited to join
the session to discuss potential overlaps and collaborations.
We are now looking forward to complete the review process by the end of
June and to plan for a first meeting of the newly-instituted HDIG at the
8th RDA Plenary in Denver, in September 2016.
To succeed in the review process and actively engage in the group, some
actions are needed: first of all, an updated charter has been prepared
taking into account the latest recommendations and comments received
during the community and the TAB review. This includes a selection of
priority topics the IG will start to focus on, and a major involvement
of worldwide participants in the group, as much as participants with
clinical expertise.
Please, have a look at the revised Charter, now available at
https://rd-alliance.org/group/health-data/case-statement/health-data.html.
We would very much appreciate receiving any comments, or suggestions of
editing the content within the end of August 2016, as well as further
indications of potentially interested partners, which it would be
worthwhile to try and engage.
We are also submitting a session proposal for the 8th RDA Plenary in
Denver, in September 2016, where we would like to invite you.
Preliminary information on the event can be found at
https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
With best regards,
Ludovica Durst, Ph.D.
***@***.***
Lynkeus S.r.l.
Via Livenza 6, 00198 Roma
Tel. (+39)06 8440801
Fax (+39)06 85344833
—
Full post:
https://rd-alliance.org/group/health-data/post/rda-health-data-interest-…
Manage my subscriptions: https://rd-alliance.org/mailinglist
Stop emails for this post:
https://rd-alliance.org/mailinglist/unsubscribe/52724
CHOCLX-MGSM made the following annotations
———————————————————————
Fri Jun 10 2016 10:42:33
This email message and any files transmitted are sent with confidentiality in mind and contain privileged or copyright information. You must not present this message to another party without gaining permission from the sender. If you are not the intended recipient you must not copy, distribute or use this email or the information contained in it for any purpose other than to notify Children’s Hospital of Orange County. Any views expressed in this message are those of the sender, except where the sender specifically states them to be the views of Children’s Hospital of Orange County. If you have received this message in error, please notify the sender immediately, and delete this email from your system. We do not guarantee that this material is free from viruses or any other defects although due care has been taken to minimize the risk.
———————————————————————

[Ludovica Durst]

Dear Chang,
I’m really sorry for my late reply but we’ve been overwhelmed by the submission of a project proposal and I couldn’t think about any other things!
Thank you very much for your kind reply, and for the interest you showed about being part of the process of this new Interest Group on Health Data. I’ll be back to you next week with further details on our initiatives, possibly looking for your participation at the meeting in Denver next September (the date proposed for our session is saturday 17th Sept. in the morning). Your involvement in the process would really add great value to our ideas and intentions.
Best regards
Ludovica
—– Messaggio originale —–
Da: “Anthony Chang”
A: “ludolynkeus” , ***@***.***-groups.org
Cc: ***@***.***-innovation.gr, “Laura Beken” , “Fotis Karagiannis” , “Edwin Morley-Fletcher” , “Spyro Mousses” , “Spyro Mousses”
Inviato: Venerdì, 10 giugno 2016 19:42:26
Oggetto: Re: [healthdata] RDA Health Data Interest Group – Revised Charter
Dear Ludovica,
Good to meet you virtually!
As Edwin may have informed you, I am a pediatric cardiologist with a
strong interest in data science and AI. I am graduating from the
Stanford School of Medicine Masters program in Data Science this week
and will continue my work in AI there. I am also the founder of the
international Society for Pediatric Innovation (iSPI) and we have a
working group on data and data sharing as well as a scientific committee
on artificial intelligence. We already have 28 charter members and more
will be joining. Also, I am organizing a course as well as a textbook in
data science and AI in healthcare and medicine.
I am very interested in being part of this process you have elucidated.
Lets chat about how we can converge!
Best,
ACC
Anthony C. Chang, MD, MBA, MPH
Chief Intelligence and Innovation Officer
Medical Director, The Sharon Disney Lund Medical Intelligence and
Innovation Institute (MI3)
Children’s Hospital of Orange County
1201 West La Veta
Orange, CA 92868
T: (714) 509-7576 F: (714) 509-4962
Coming Soon!
The First International Symposium on Medical Intelligence: Analytics
and Algorithms, Big Data, Cloud and Cognitive Computing, and Deep
Learning in Medicine and Healthcare.
>>> ludolynkeus 5/31/2016 2:59 AM >>>
Dear all,
On behalf of the co-Chairs of the proposed Health Data Interest Group
(HDIG), please find some updates on the group’s work after the BoF
session held at the Tokyo plenary on 1st March 2016.
This meeting followed a BoF held in Paris at P6, in September 2015,
where the HDIG was encouraged to go for the RDA formal submission and
review process, and a first TAB review which led to an updated charter
presented during the BoF in Tokyo.
The session in Tokyo was also attended by the co-Chairs and/or members
from other groups with potential link with the HDIG, such as Data
Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
Implications of Research Data Sets WG, who were warmly invited to join
the session to discuss potential overlaps and collaborations.
We are now looking forward to complete the review process by the end of
June and to plan for a first meeting of the newly-instituted HDIG at the
8th RDA Plenary in Denver, in September 2016.
To succeed in the review process and actively engage in the group, some
actions are needed: first of all, an updated charter has been prepared
taking into account the latest recommendations and comments received
during the community and the TAB review. This includes a selection of
priority topics the IG will start to focus on, and a major involvement
of worldwide participants in the group, as much as participants with
clinical expertise.
Please, have a look at the revised Charter, now available at
https://rd-alliance.org/group/health-data/case-statement/health-data.html.
We would very much appreciate receiving any comments, or suggestions of
editing the content within the end of August 2016, as well as further
indications of potentially interested partners, which it would be
worthwhile to try and engage.
We are also submitting a session proposal for the 8th RDA Plenary in
Denver, in September 2016, where we would like to invite you.
Preliminary information on the event can be found at
https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
With best regards,
Ludovica Durst, Ph.D.
***@***.***
Lynkeus S.r.l.
Via Livenza 6, 00198 Roma
Tel. (+39)06 8440801
Fax (+39)06 85344833
—
Full post:
https://rd-alliance.org/group/health-data/post/rda-health-data-interest-…
Manage my subscriptions: https://rd-alliance.org/mailinglist
Stop emails for this post:
https://rd-alliance.org/mailinglist/unsubscribe/52724
Dear all,
On behalf of the co-Chairs of the proposed Health Data Interest Group
(HDIG), please find some updates on the group’s work after the BoF
session held at the Tokyo plenary on 1st March 2016.
This meeting followed a BoF held in Paris at P6, in September 2015,
where the HDIG was encouraged to go for the RDA formal submission and
review process, and a first TAB review which led to an updated charter
presented during the BoF in Tokyo.
The session in Tokyo was also attended by the co-Chairs and/or members
from other groups with potential link with the HDIG, such as Data
Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
Implications of Research Data Sets WG, who were warmly invited to join
the session to discuss potential overlaps and collaborations.
We are now looking forward to complete the review process by the end of
June and to plan for a first meeting of the newly-instituted HDIG at the
8th RDA Plenary in Denver, in September 2016.
To succeed in the review process and actively engage in the group, some
actions are needed: first of all, an updated charter has been prepared
taking into account the latest recommendations and comments received
during the community and the TAB review. This includes a selection of
priority topics the IG will start to focus on, and a major involvement
of worldwide participants in the group, as much as participants with
clinical expertise.
Please, have a look at the revised Charter, now available at
https://rd-alliance.org/group/health-data/case-statement/health-data.html.
We would very much appreciate receiving any comments, or suggestions of
editing the content within the end of August 2016, as well as further
indications of potentially interested partners, which it would be
worthwhile to try and engage.
We are also submitting a session proposal for the 8th RDA Plenary in
Denver, in September 2016, where we would like to invite you.
Preliminary information on the event can be found at
https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
With best regards,
Ludovica Durst, Ph.D.
***@***.***
Lynkeus S.r.l.
Via Livenza 6, 00198 Roma
Tel. (+39)06 8440801
Fax (+39)06 85344833
—
Full post:
https://rd-alliance.org/group/health-data/post/rda-health-data-interest-…
Manage my subscriptions: https://rd-alliance.org/mailinglist
Stop emails for this post:
https://rd-alliance.org/mailinglist/unsubscribe/52724
CHOCLX-MGSM made the following annotations
———————————————————————
Fri Jun 10 2016 10:42:33
This email message and any files transmitted are sent with confidentiality in mind and contain privileged or copyright information. You must not present this message to another party without gaining permission from the sender. If you are not the intended recipient you must not copy, distribute or use this email or the information contained in it for any purpose other than to notify Children’s Hospital of Orange County. Any views expressed in this message are those of the sender, except where the sender specifically states them to be the views of Children’s Hospital of Orange County. If you have received this message in error, please notify the sender immediately, and delete this email from your system. We do not guarantee that this material is free from viruses or any other defects although due care has been taken to minimize the risk.
———————————————————————

[Anthony Chang]

Dear Ludovica,
I would be delighted to help in anyway.
Please inform me ASAP in regards to the Denver meeting as I will need
to clear my schedule.
Best
ACC
Anthony C. Chang, MD, MBA, MPH
Chief Intelligence and Innovation Officer
Medical Director, The Sharon Disney Lund Medical Intelligence and
Innovation Institute (MI3)
Children’s Hospital of Orange County
1201 West La Veta
Orange, CA 92868
T: (714) 509-7576 F: (714) 509-4962
Coming Soon!
The First International Symposium on Medical Intelligence: Analytics
and Algorithms, Big Data, Cloud and Cognitive Computing, and Deep
Learning in Medicine and Healthcare.
>>> Ludovica Durst 6/22/2016 10:09 AM >>>
Dear Chang,
I’m really sorry for my late reply but we’ve been overwhelmed by the
submission of a project proposal and I couldn’t think about any other
things!
Thank you very much for your kind reply, and for the interest you
showed about being part of the process of this new Interest Group on
Health Data. I’ll be back to you next week with further details on our
initiatives, possibly looking for your participation at the meeting in
Denver next September (the date proposed for our session is saturday
17th Sept. in the morning). Your involvement in the process would really
add great value to our ideas and intentions.
Best regards
Ludovica
—– Messaggio originale —–
Da: “Anthony Chang”
A: “ludolynkeus” , ***@***.***-groups.org
Cc: ***@***.***-innovation.gr, “Laura Beken” ,
“Fotis Karagiannis” , “Edwin
Morley-Fletcher” , “Spyro Mousses” ,
Dear Ludovica,
I would be delighted to help in anyway.
Please inform me ASAP in regards to the Denver meeting as I will need
to clear my schedule.
Best
ACC
Anthony C. Chang, MD, MBA, MPH
Chief Intelligence and Innovation Officer
Medical Director, The Sharon Disney Lund Medical Intelligence and
Innovation Institute (MI3)
Children’s Hospital of Orange County
1201 West La Veta
Orange, CA 92868
T: (714) 509-7576 F: (714) 509-4962
Coming Soon!
The First International Symposium on Medical Intelligence: Analytics
and Algorithms, Big Data, Cloud and Cognitive Computing, and Deep
Learning in Medicine and Healthcare.
December 11-14, 2016.
>>> Ludovica Durst 6/22/2016 10:09 AM >>>
Dear Chang,
I’m really sorry for my late reply but we’ve been overwhelmed by the
submission of a project proposal and I couldn’t think about any other
things!
Thank you very much for your kind reply, and for the interest you
showed about being part of the process of this new Interest Group on
Health Data. I’ll be back to you next week with further details on our
initiatives, possibly looking for your participation at the meeting in
Denver next September (the date proposed for our session is saturday
17th Sept. in the morning). Your involvement in the process would really
add great value to our ideas and intentions.
Best regards
Ludovica
—– Messaggio originale —–
Da: “Anthony Chang”
A: “ludolynkeus” , ***@***.***-groups.org
Cc: ***@***.***-innovation.gr, “Laura Beken” ,
“Fotis Karagiannis” , “Edwin
Morley-Fletcher” , “Spyro Mousses” ,
“Spyro Mousses”
Inviato: Venerdì, 10 giugno 2016 19:42:26
Oggetto: Re: [healthdata] RDA Health Data Interest Group – Revised
Charter
Dear Ludovica,
Good to meet you virtually!
As Edwin may have informed you, I am a pediatric cardiologist with a
strong interest in data science and AI. I am graduating from the
Stanford School of Medicine Masters program in Data Science this week
and will continue my work in AI there. I am also the founder of the
international Society for Pediatric Innovation (iSPI) and we have a
working group on data and data sharing as well as a scientific
committee
on artificial intelligence. We already have 28 charter members and
more
will be joining. Also, I am organizing a course as well as a textbook
in
data science and AI in healthcare and medicine.
I am very interested in being part of this process you have
elucidated.
Lets chat about how we can converge!
Best,
ACC
Anthony C. Chang, MD, MBA, MPH
Chief Intelligence and Innovation Officer
Medical Director, The Sharon Disney Lund Medical Intelligence and
Innovation Institute (MI3)
Children’s Hospital of Orange County
1201 West La Veta
Orange, CA 92868
T: (714) 509-7576 F: (714) 509-4962
Coming Soon!
The First International Symposium on Medical Intelligence: Analytics
and Algorithms, Big Data, Cloud and Cognitive Computing, and Deep
Learning in Medicine and Healthcare.
>>> ludolynkeus 5/31/2016 2:59 AM >>>
Dear all,
On behalf of the co-Chairs of the proposed Health Data Interest Group
(HDIG), please find some updates on the group’s work after the BoF
session held at the Tokyo plenary on 1st March 2016.
This meeting followed a BoF held in Paris at P6, in September 2015,
where the HDIG was encouraged to go for the RDA formal submission and
review process, and a first TAB review which led to an updated charter
presented during the BoF in Tokyo.
The session in Tokyo was also attended by the co-Chairs and/or members
from other groups with potential link with the HDIG, such as Data
Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
Implications of Research Data Sets WG, who were warmly invited to join
the session to discuss potential overlaps and collaborations.
We are now looking forward to complete the review process by the end
of
June and to plan for a first meeting of the newly-instituted HDIG at
the
8th RDA Plenary in Denver, in September 2016.
To succeed in the review process and actively engage in the group,
some
actions are needed: first of all, an updated charter has been prepared
taking into account the latest recommendations and comments received
during the community and the TAB review. This includes a selection of
priority topics the IG will start to focus on, and a major involvement
of worldwide participants in the group, as much as participants with
clinical expertise.
Please, have a look at the revised Charter, now available at
https://rd-alliance.org/group/health-data/case-statement/health-data.html.
We would very much appreciate receiving any comments, or suggestions
of
editing the content within the end of August 2016, as well as further
indications of potentially interested partners, which it would be
worthwhile to try and engage.
We are also submitting a session proposal for the 8th RDA Plenary in
Denver, in September 2016, where we would like to invite you.
Preliminary information on the event can be found at
https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
With best regards,
Ludovica Durst, Ph.D.
***@***.***
Lynkeus S.r.l.
Via Livenza 6, 00198 Roma
Tel. (+39)06 8440801
Fax (+39)06 85344833
—
Full post:
https://rd-alliance.org/group/health-data/post/rda-health-data-interest-…
Manage my subscriptions: https://rd-alliance.org/mailinglist
Stop emails for this post:
https://rd-alliance.org/mailinglist/unsubscribe/52724
CHOCLX-MGSM made the following annotations
———————————————————————
Fri Jun 10 2016 10:42:33
This email message and any files transmitted are sent with
confidentiality in mind and contain privileged or copyright information.
You must not present this message to another party without gaining
permission from the sender. If you are not the intended recipient you
must not copy, distribute or use this email or the information contained
in it for any purpose other than to notify Children’s Hospital of Orange
County. Any views expressed in this message are those of the sender,
except where the sender specifically states them to be the views of
Children’s Hospital of Orange County. If you have received this message
in error, please notify the sender immediately, and delete this email
from your system. We do not guarantee that this material is free from
viruses or any other defects although due care has been taken to
minimize the risk.
———————————————————————
Dear all,
On behalf of the co-Chairs of the proposed Health Data Interest Group
(HDIG), please find some updates on the group’s work after the BoF
session held at the Tokyo plenary on 1st March 2016.
This meeting followed a BoF held in Paris at P6, in September 2015,
where the HDIG was encouraged to go for the RDA formal submission and
review process, and a first TAB review which led to an updated charter
presented during the BoF in Tokyo.
The session in Tokyo was also attended by the co-Chairs and/or members
from other groups with potential link with the HDIG, such as Data
Security and Trust Working Group (WGDST) and the RDA/NISO Privacy
Implications of Research Data Sets WG, who were warmly invited to join
the session to discuss potential overlaps and collaborations.
We are now looking forward to complete the review process by the end
of
June and to plan for a first meeting of the newly-instituted HDIG at
the
8th RDA Plenary in Denver, in September 2016.
To succeed in the review process and actively engage in the group,
some
actions are needed: first of all, an updated charter has been prepared
taking into account the latest recommendations and comments received
during the community and the TAB review. This includes a selection of
priority topics the IG will start to focus on, and a major involvement
of worldwide participants in the group, as much as participants with
clinical expertise.
Please, have a look at the revised Charter, now available at
https://rd-alliance.org/group/health-data/case-statement/health-data.html.
We would very much appreciate receiving any comments, or suggestions
of
editing the content within the end of August 2016, as well as further
indications of potentially interested partners, which it would be
worthwhile to try and engage.
We are also submitting a session proposal for the 8th RDA Plenary in
Denver, in September 2016, where we would like to invite you.
Preliminary information on the event can be found at
https://rd-alliance.org/plenaries/rda-eighth-plenary-meeting-denver-co.
With best regards,
Ludovica Durst, Ph.D.
***@***.***
Lynkeus S.r.l.
Via Livenza 6, 00198 Roma
Tel. (+39)06 8440801
Fax (+39)06 85344833
—
Full post:
https://rd-alliance.org/group/health-data/post/rda-health-data-interest-…
Manage my subscriptions: https://rd-alliance.org/mailinglist
Stop emails for this post:
https://rd-alliance.org/mailinglist/unsubscribe/52724
CHOCLX-MGSM made the following annotations
———————————————————————
Fri Jun 10 2016 10:42:33
This email message and any files transmitted are sent with
confidentiality in mind and contain privileged or copyright information.
You must not present this message to another party without gaining
permission from the sender. If you are not the intended recipient you
must not copy, distribute or use this email or the information contained
in it for any purpose other than to notify Children’s Hospital of Orange
County. Any views expressed in this message are those of the sender,
except where the sender specifically states them to be the views of
Children’s Hospital of Orange County. If you have received this message
in error, please notify the sender immediately, and delete this email
from your system. We do not guarantee that this material is free from
viruses or any other defects although due care has been taken to
minimize the risk.
———————————————————————

[Author]

Replies