Hi All,
Many thanks for the call today. I really enjoyed meeting you over the phone and I look forward to meeting with you in person in Denver.
I would like to draw your attention to a session on sharing personal/sensitive research data that Fiona Nielsen and I are chairing during SciDataCon.
Date: Monday, 12 September, after lunch break
Title: Sharing of personal/sensitive research data
Description:
Sharing research data comes with many ethical and legal issues. Since these issues are often complex and can rarely be solved with one size fits all solutions, they tend not to be proposed as topics of conferences and workshops. However, these are important problems and they need to be comprehensively addressed. During this session we will discuss we will discuss workflow for sharing personal/sensitive data as well as procedures for safeguarding personal/sensitive data shared via repositories.
Speakers:
* Paul Francis: The Data Transparency Lab: Experiences in data sharing
* Elizabeth A. Hull: Protecting Human Subjects in an Open Data Repository
* Sebastian Karcher: Rethinking Data Sharing and Human Participant Protection in Social Science Research: Applications from the Qualitative Realm
* Nadia Kovalevskaya and Fiona Nielsen: How to increase accessibility and reuse for clinical and personal genomic data
* Jared Lyle and Maggie Levenstein: Sharing sensitive social and behavioral science data
* Sara Mannheimer: Putting the “I” in Data: The Ethics of Using Human-Generated Data as a Research Tool
* Marta Teperek: Starting from the end: what to do when restricted data is released
* Neil Walker: False promises of data anonymity jeopardize data access
Chairs:
Fiona Nielsen and Marta Teperek
Best wishes,
Marta
Marta Teperek, PhD
Research Data Facility Manager
Cambridge University Library / Research Operations Office
e-mail: ***@***.***
tel. 01223 333138 (Friday – Wednesday)
tel. 01223 761652 (Thursday)
http://www.data.cam.ac.uk – everything you need to know about data management and sharing
– Show quoted text -From: lquilter=***@***.***-groups.org [mailto:***@***.***-groups.org] On Behalf Of lquilter
Sent: 29 August 2016 17:10
To: nettielagace ; RDA/NISO Privacy Implications of Research Data Sets IG
Subject: [rdaniso-privacy] Re: [rdaniso-privacy] task force organization call pre-P8 / Monday August 29, noon…
Hi Nettie — Last minute conflict with today’s call.
My interests (in no particular order) lie in (a) disciplinary differences,
(b) definitions and use cases, and (c) policy and practice.
I could perhaps be helpful in the “legal variances” section although that
seems more focused on international transfer of data, which is not
something I would be particularly expert in.
In short I’m happy to help out in one of the a-b-c teams, or I could
be persuaded about the “legal variances” section.
Best,
Laura Quilter
———————————————————–
Laura Quilter, MLS, JD
Attorney, Geek, Militant Librarian, Teacher
Copyright and Information Policy Librarian
University of Massachusetts, Amherst
***@***.***
On Mon, Aug 29, 2016 at 12:03 PM, nettielagace wrote:
hi, we’re starting our call now… please join if you can!
On Aug 23, 2016, at 4:33 PM, nettielagace wrote:
hi everyone, thanks for the input on the poll.
The time that matched for the greatest number of respondents was Monday, August 29 at noon to 1 pm Eastern time. Please mark your calendars!
CONFERENCE CALL DIAL-IN:
Dial-In Number (US & Canada): (877) 375-2160
International numbers: http://bit.ly/niso-dialin
Conference code: 10711493
As mentioned last week, we will discuss the task groups [see https://rd-alliance.org/group/rdaniso-privacy-implications-research-data… and what is necessary to move them forward. If you have signed up, or have not yet signed up, your input is needed!
Thanks and talk soon,
Nettie
On Aug 18, 2016, at 3:37 PM, nettielagace wrote:
Greetings,
We thought we’d try to organize a conference call in advance of P8 to discuss the task groups (https://rd-alliance.org/group/rdaniso-privacy-implications-research-data…) and their organization and next steps. This call is for anyone who has signed up for a task group OR anyone who is still considering which task group they’d like to join!
Please fill out this Doodle poll at http://doodle.com/poll/yqwmgshus57y9ytf by noon Eastern time on Monday August 22 and we’ll pick the time that works for the most people.
Thanks,
Nettie
———————-
Nettie Lagace
Associate Director for Programs
National Information Standards Organization (NISO)
3600 Clipper Mill Road, Suite 302
Baltimore, MD 21211
Mobile: 617-863-0501
Fax: 410-685-5278
E-mail: ***@***.***
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