EOSC Future grant: Ethics and Law

The RDA / EOSC Future Ambassador for Ethics & Law has the goal of advancing the understanding of the European Open Science Cloud Future Project with scientists and research institutions, as well as with patients, communities, health advocates, and the public, providing important emphasis on those instances otherwise underrepresented in initiatives for Open Science. The ambassadorship includes outreach to institutions and people. This includes public and private institutions that are engaged with processing research data and eventually finding repositories for that data, publishing the data and the finding from the data, and/or sharing or re-using data.

Francis P. Crawley, domain ambassador for Ethics and Law is a philosopher specialized in research ethics and methodology, integrity, and data/AI ethics & law. He is the Executive Director of the Good Clinical Practice Alliance – Europe (GCPA) and the Strategic Initiative for Developing Capacity in Ethical Review (SIDCER) located in Leuven, Belgium. He has been a member of the Research Data Alliance’s (RDA) Legal and Ethics Working Group and the Community Participation Working Group. He recently launched and chairs the Artificial Intelligence and Data Visitation Working Group (RDA AIDV-WG). He is also a member of the Research Data Publishing Ethics Working Group with FORCE11 & The Committee on Publication Ethics (COPE), the Pistoia Alliance, Regulatory and Ethics Work Stream of the Global Alliance for Genomics & Health (GA4GH-REWS), and the Data Stewardship Working Group of the Virus Outbreak Data Network (VODAN) GO-FAIR. He brings substantial experience (UNAIDS, WHO, WMA, UNESCO, and others, including local organizations and industry) in developing health-related research projects, collaborative engagements, regulatory and policy outreach, and education and training in Europe, Africa, Asia, the Americas, and Eastern Europe & Central Asia. He has played a leading role in the development of international and national guidelines, capacity-building, empowerment, and education programmes for health research, including GCP, ethics review systems, and data privacy & management (a GDPR DPO), with expertise in the ethics of ML & AI. Recently he launched the Ukraine Clinical Research Support Initiative (UCRSI) that includes a workstream on clinical research data in conflict situations.