[Claudia Bauzer Medeiros]

Dear RDA COVID 19 group
I am part of the implementation effort of this large COVID19 data repository, with
open data from 75,000 Brazilian patients. To be incremented periodically with new
Brazilian data.
As posted by RDA-Portugal (my profuse thanks), on June 17 we launched a pilot
dataset from 300 patients, and welcome all of you to check, test, and report your
remarks and suggestions.
Two important issues:
a) The whole is in Portuguese only. This is one of the many compromises we had to
make to ensure immediate availability, so that we can provide a fast response to
demands from researchers.
b) It is based on (and takes advantage of) a previously constructed open research
data repository network (launched in dec 2019), which was built with expansibility
in mind – took 3 years from design to delivery.
Thanks to (b), we have been able to conceive, design and deliver the data to the
world in 1 month (including all legal contracts among the healthcare centers that
are providing the data.
The network mentioned in (b) was constructed following many RDA recommendations
and with help of many RDA members
My many thanks to RDA-Portugal for posting this in our rda-covid19 network, and also
thanks to all of you who check, test, and provide feedback by June 24.
The full dataset will become available – and open – on July 1st, at the same address.
Claudia
— Claudia Bauzer Medeiros, member of RDA Council, and of rda-covid19

Discussion

[Joao Miranda]

Good day!
Are the kind colleagues aware that FAPESP (BR)
has already launched the mega-repository of COVID-19 data?
 
Very much thanking your kind attention,
the link and the text follows at once!
 
https://repositoriodatasharingfapesp.uspdigital.usp.br/
> (sic)
 

[Author]

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