Health Data


Group details

Yannis Ioannidis, Anthony Chang, Edwin Morley-Fletcher
Secretariat Liaison: 
Fotis Karagiannis
TAB Liaison: 
Rainer Stotzka
Case Statement: 

The proposed Interest Group on “Health Data” (HD-IG) is a long-term initiative in the framework of RDA. It follows a rather successful BoF Session during the 6th RDA Plenary Meeting in Paris, which was attended by over 35 researchers and professionals from diverse backgrounds, who discussed several relevant issues, expressed significant interest in forming the proposed Interest Group, and helped shape its focus as presented here. The Interest Group will fill a gap in the RDA subject map formed by its current WGs and IGs, as at the moment, there is no RDA group focusing on the intricacies of Health Data, especially as it relates to privacy and security issues in Healthcare. Establishment of this IG will also enrich the set of communities involved in and contributing to RDA, as there are several professions as well as research disciplines that revolve around Health Data.




Link to TAB review

Recent Activity

11 Sep 2017

remote access to HDIG sessions at RDA P10 in Montreal

Dear all
we're glad to inform you that remote connection and participation to both our group sessions at P10 will be available, the Gotomeeting links can be found on the sessions' webpages:
1. HDIG session, taking place Thursday 21st, 9-10.30 (;

13 Aug 2017

Health Data IG meeting at RDA P10 in Montreal

Dear all,
we're glad to announce that the Health Data Interest Group will be running two sessions at the next RDA Plenary Assembly (P10) in Montreal:
1. a session on "Health data mapping and diverging trends in health data protection" will take place on Thursday 21st September at 9.00 am - here's the agenda of the meeting:

07 Jul 2017

Health Data Fellows Presentation

The RDA US Fellows will be presenting a short synopsis of their RDA
projects next Monday. If you would like to call in, please see the
information below. I do realize that the time is not optimal for the
European group, however, it was the best we could do given constraints with
summer holidays.
If you have any questions, please let me know.
Leslie McIntosh Borrelli
*RDA Health Data Fellows and Friends *
Mon, Jul 10, 2017 3:00 PM - 4:00 PM MDT/ 21:00 UTC

19 Apr 2017

Health and medical data sharing webinar series in Australia

Hi all
In case anyone is interested, we have an upcoming health and medical
webinar series. We are based in Australia, so some information is location
specific, but some will be relevant to health research and data sharing in
other countries. The webinars are recorded so if they're in the middle of
the night for you, just register and we send everyone who has registered
links to the recordings after.
Here is the information:
The Australian National Data Service (ANDS )

30 Mar 2017

Re: Health Data RDA - Visualisation

I am looking forward to our follow-up meeting (in 30 minutes for the first meeting). Please note that Doodle has the time correct and is corrected below.
The agenda includes:
* An overview of the work to date
* Adding individuals who would like to contribute to the map
* Reviewing the categories and contents
If you would like to look at the current state of the simplified visualization, please see:

26 Mar 2017

Health Data RDA - Visualisation

The follow-up meeting for "Health Data RDA - Visualisation"will be:
Thursday, March 30, 2017 9:00 (CDT-US) / 15:00 (CET-Europe)
Thursday, March 30, 2017 17:00 (CDT-US) / Friday, March 31, 2017 9:00 (AEDT – Australia)
This link should work for both meetings:
Dial-in phone numbers:
Access Code: 765-004-669
United States: +1 (646) 749-3117
Australia: +61 2 8355 1038
Austria: +43 1 2530 22500

23 Mar 2017

Research Data Alliance DDPIG Interim Outputs for review and comment

Dear RDA Interest Group members,

We wish to share with you the draft outputs created by three of
the Task Force teams of the RDA Data Discovery Paradigms Interest
Group. We think one or more of these outputs are relevant to the
work your IG is doing. Your thoughts and feedback on the three
interim documents will be greatly appreciated: