Health Data Interest Group


Group details

TAB Liaison: 
Rainer Stotzka
Case Statement: 
IG Established

The proposed Interest Group on “Health Data” (HD-IG) is a long-term initiative in the framework of RDA. It follows a rather successful BoF Session during the 6th RDA Plenary Meeting in Paris, which was attended by over 35 researchers and professionals from diverse backgrounds, who discussed several relevant issues, expressed significant interest in forming the proposed Interest Group, and helped shape its focus as presented here. The Interest Group will fill a gap in the RDA subject map formed by its current WGs and IGs, as at the moment, there is no RDA group focusing on the intricacies of Health Data, especially as it relates to privacy and security issues in Healthcare. Establishment of this IG will also enrich the set of communities involved in and contributing to RDA, as there are several professions as well as research disciplines that revolve around Health Data.




Link to TAB review

Recent Activity

14 Dec 2018

P12 presentation

Dear Health Data IG members!
First of all, on behalf of the co-chairs, we would like to thank everyone who could attend our group session in Gaborone last month, even if partially conducted remotely!
The presentation on genomic data and privacy is now available in the file repository on our group page,
We're now looking forward to applying for the Health Data IG session at the next Plenary in Philadelphia, 2-4 April 2019. We'll keep you updated.

16 Jul 2018

SWAT4HCLS - Secondary use of Health Data

Dear All,
This year in SWAT4HCLS conference we will host a thematic session on the
secondary use of health data.
The conference covers a wide range of topics including, but not limited to,
FAIR data, health data exchange and data reuse infrastructures, meaningful
use, metadata management, data provenance and traceability, trust and
reproducibility, ethical issues, privacy and data governance in health and
life sciences.

11 Jun 2018

RDA Reproducible Health Data Services Working Group Meeting 12th of June 18:00- 19:00 CEST (GMT+01:00);

Dear All,
The first meeting of the RDA Reproducible Health Data Services WG will be
tomorrow, at
12th of June, Tuesday at 18:00- 19:00 CEST

(GMT+01:00); at 09:00-10:00 PDT (UTC -7).
Please find the GoToMeeting link below, all interested parties are welcome.
RDA Reproducible Health Data Service Workflows Working Group Meeting
Tue, 12 Jun 2018 18:00 - 19:00 CEST
Please join my meeting from your computer, tablet or smartphone.

18 May 2018

RDA Reproducible Health Data Service Workflows Working Group

Dear RDA Health Data members,
At the Berlin plenary we discussed aims and the planned activities of the
reproducible health data services working group.
The overarching aim of the group is to improve the capture and the storage
of data provenance metadata for the health data brokerages/services. We aim
to achieve two outcomes:
- to identify the available set of standards to support capture of
curation processes and perform a gap analysis
- to develop an adoption and training guide with best practices

10 May 2018

Re: [communications][healthdata] Fwd: [healthdata] following P11

Thank you Timea.
Best, Ludovica
----- Messaggio originale -----
Da: "Timea Biro" <***@***.***>
A: "Communications" <***@***.***>, "healthdata" <***@***.***>
Inviato: Giovedì, 10 maggio 2018 13:06:49
Oggetto: [communications][healthdata] Fwd: [healthdata] following P11
This would be a nice addition to the newsletter, in the updates from
groups section.
-------- Forwarded Message --------
Subject: [healthdata] following P11

07 Feb 2018

WG Blockchain session at RDA P11 at 2pm, Wed 21 March

Dear all,
Please note that the "WG Blockchain solutions for accessing health data" session at the next RDA P11 in Berlin has been postponed to Breakout2: Wednesday, 21st March, h. 14.00-15.30! Hope to see you there!
Ludovica Durst, Ph. D.
Lynkeus S.r.l.
Via Livenza 6, 00198 Roma
Tel. +39 06 8440801

02 Feb 2018

Health Data sessions at RDA P11 in Berlin

Dear all,
we're glad to announce that our proposal for the Health Data IG session on "Reproducible Data Service Workflows, Diverging Trends in Health Data Protection, Grand Challenges in Biomedical Data Ecosystem" at the next P11 in Berlin has been accepted!
You're all welcome to join it on-site or remotely Thursday 22nd March (15.30-17.00). Here's the agenda of the meeting:

20 Nov 2017

Health Data IG - Call last week in November

Greetings Health Data IG,
We have been working on the a couple of things since Montreal as was noted in the recent announcement. There will be a call to discuss the progress and get feedback on one part - The RDA Adoption and Training Guide for Reproducible Data Service Workflows
Case Statement: