WG Blockchain Applications in Health - RDA 12th Plenary Meeting

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Meeting Title 
Tokenomics and cryptocurrencies in Health (Remote Access Instructions)

Meeting room: Tsodilo B3

Collaborative session notes
https://docs.google.com/document/d/1kuRqJwuuAIG79eknd_Ges5-dsUSK6y3lJ284p4Rj5mk/edit?usp=sharing

Short introduction describing the activities and the scope of the group

After two successful BoFs held at P9 in Barcelona and at P10 in Montreal, the Health Data Interest Group (HDIG) has gained support within the RDA community for the idea of establishing a WG focusing on Blockchain in health data. While completing the review and endorsement process, the Plenary in Berlin was already the occasion for carrying on the debate on the WG objectives, with special regard to the potential of such a system and whether the blockchain can ensure compliance with advanced data protection requirements (such as those defined, for instance, by the EU General Data Protection Regulation – GDPR), yet making it happen seamlessly and efficiently, at scale. 

The forthcoming P12 in Gabarone, Botswana, will hopefully provide the first official meeting of the newly established WG, where the first WG goal as described in the case statement will be properly addressed: the state-of-the-art report (after 6 months) describing the current experiences in blockchain based handling of health data.

Furthermore, the session will be an occasion for brainstorming and discussing on potential uses and challenges coming from crytpocurrencies such as “tokenomics” – which are based on blockchain technologies and represent a novel type of pioneering social business model, involving the usage of specific protocols for exchanging value between participants on a decentralized computer network – when applied to healthcare.
 
Tokens are a form of cryptocurrency tied to a specific purpose. In a distributive economy, spreading currency issueance spreads also value creation. Tokens provide a specialised means of exchange and mediation of needs, which can allow to “remonetize” welfare services after years of “de-commodification”. In healthcare, without contradicting the free-access character of health services, this can lead to transferring the purchasing power implied in the supply of services in kind directly to the users, genuinely empowering them. Tokens allow to incentivise demand and direct it toward goods and services to which a particular social or individual importance can be attributed. Being by definition programmable, also because of the self-executable nature of the smart contracts triggered by their circulation, tokens are specially suitable to tackle issues of allocational efficiency, such as informational asymmetry, externalities, and merit goods. Tokens can therefore be deemed to act as a key tool for a social market where solidarity can be transferred from the vocabulary of political rhetoric to the calculation of consensus, relying upon distributed ledger technology for tamper-proof recording of consented transactions, triggered by fine-tuned smart contracts.

Additional links

Blockchain Applications in Health WG page: https://rd-alliance.org/groups/blockchain-applications-health-wg 
Case statement: https://rd-alliance.org/group/blockchain-applications-health-wg/case-sta...
Presentations for "Health Data and Blockchain" BoFs P9 (Barcelona) and P10 (Montreal) and WG meeting on "Blockchain solutions for accessing Health Data" at P11 (Berlin): https://rd-alliance.org/presentations-blockchain-and-health-data-p9-p10-...
HDIG page: https://rd-alliance.org/groups/health-data.html

Meeting objectives

1) Present and Discuss the objectives of the case statement of the Working Group and first steps to make the WG activities started
2) Addressing the state-of-the-art report, to be presented as first result after 6 months of activities
3) Brainstorming on possible uses of tokenomics and cryptocurrencies applied to Healthcare

Meeting agenda

*Brief introduction to the Working Group main objectives
*Guest speakers on Tokenomics and Healthcare
* Internal discussion on WG’s activities with special regard to the state-of-the-art report (first WG’s report) and next steps
 

Audience

For this session, we invite Healthcare Data Scientists dealing with data licensing and patient privacy issues, distributed system experts, privacy and security researchers from informatics and computer science, Policy-makers for Healthcare, Health bioinformatics legal experts, Healthcare and Health Maintenance Organisation administrators, Clinicians (to use data technology to improve practice), Biomedical researchers (using analytical techniques), Pharmaceutical industry researchers and manufacturers, Medical equipment researchers and manufacturers, In silico modelling, testing and clinical trial experts and other interested professionals.

Group chair serving as contact person
Edwin Morley-Fletcher, David Manset

Type of meeting
Working meeting


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