Research Data Management and Sharing in Low and Middle-Income Countries - RDA 12th Plenary Meeting

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BoF meeting title

Research Data Management and Sharing in Low and Middle-Income Countries

Collaborative session notes:

Short introduction describing the scope of the group and if any previous activities

Canada’s federal granting councils (the Social Sciences and Humanities Research Council, the Natural Sciences and Engineering Research Council, and the Canadian Institutes of Health Research) have held BoFs for Funders and Stakeholders on Open Research and Data Management Policies at the 10th and 11th RDA Plenaries (the latter in collaboration with the Japan Science and Technology Agency and the DFG). They aim to develop an Interest Group proposal for submission to the RDA Secretariat. (They are currently recruiting co-chairs for the Interest Group; the Wellcome Trust has confirmed that it would like to be a co-chair, and other funders have expressed interest.)

At the BoF session at RDA 11, many stakeholders felt that among the activities the Interest Group could undertake, one key activity should be to provide a forum for research funders to:

  • provide updates on their open research and data management policy development; and
  • foster discussion among research funders and other stakeholders on trends, challenges and opportunities related to developing, implementing and responding to open research and data management policies (such as best practices with respect to adjudicating DMPs, monitoring and compliance of policies, etc.).

The BoF session being proposed for RDA 12 would address both of these points, especially the second ("foster discussion among research funders and other stakeholders on trends, challenges and opportunities related to developing, implementing and responding to open research and data management policies").

Canada’s granting agencies would collaborate with the Wellcome Trust to organize the BoF session at RDA 12.

Additional links to informative material related to the group

Relevant materials will be developed as the Interest Group moves forward with its activities.

Information about past sessions is available on the RDA website. For example, information about the session at RDA 11 is available here: https://rd-alliance.org/funders-and-stakeholders-open-research-and-data-....

Meeting objectives

Canada’s granting agencies and the Wellcome Trust would like to build on the success of the two previous BoF sessions and run a BoF meeting on research funder policies at the 12th RDA plenary in Gaborone, Botswana. Given the opportunity this will present to engage Africa-based funders, researchers and data scientists in these discussions, we propose to focus the session on the benefits and risks for funders in promoting research data sharing when funding research in low and middle-income country (LMIC) settings.

While many of the challenges that exist in supporting research data sharing in high-income settings also apply, particular concerns surrounding data sharing may arise in LMIC contexts – including issues around:

  • Equity – ensuring that requirements for data sharing do not unfairly disadvantage researchers in LMICs who may have much more limited capacity for data analysis than users in better-resourced settings elsewhere;
  • Benefit-sharing – ensuring that the researchers and communities who participate in the research are able to share appropriately in the benefits resulting from the data;
  • Capacity building – ensuring research investments in LMICs help to develop skills and resources in data management and analysis in these countries on a long-term and sustainable basis;
  • Governance and trust – ensuring that systems governing data sharing maintain the trust and support of the research community and the communities who participate in research.

The session would provide an opportunity for international and Africa-based research funders to share their experiences and perspectives on these issues and how they could be addressed.

Meeting agenda

We propose to invite a panel of 4-5 funding agency representatives to provide lightning talks (5-10 mins) to share their experiences on these issues. This would include international funders and Africa-based funding bodies. This would be followed by an open discussion on how funders could implement and adapt their policies on data sharing when supporting research in LMICs - in a way that maximises the benefits while minimising the risks.

Potential speakers could include representatives from:

  • Wellcome Trust
  • International Development Research Centre (Canada)
  • Bill & Melinda Gates Foundation
  • Global Alliance for Chronic Disease
  • South African Medical Research Council
  • European & Developing Countries Clinical Trials Partnership (EDCTP)
  • National Research Foundation (South Africa)

Audience

Research funders, researchers, data scientists and other RDA stakeholders/participants with an interest in funder policies and/or data sharing in LMICs .

Group chair serving as contact person: Jeremy Geelen (SSHRC); David Carr (Wellcome Trust); Amanda Crupi (CIHR)

Type of meeting: Informative meeting