RDA 15th Plenary - Panel Session on Indigenous Data Issues

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13 February 2020 771 reads

Co-located Event Schedule (additional meetings to be posted in coming days) | Main Plenary 15 Page


Date: 20 March 2020

Time: 09:00 - 10:30

The Global Indigenous Data Alliance (GIDA) comprised of Indigenous data sovereignty networks such as the Maiam nayri Wingara Collective (Australia); Te Mana Raraunga Maori Data Sovereignty Network (Aotearoa New Zealand); and the United States Indigenous Data Sovereignty Network signed an MOU with the Research Data Alliance to further the work of International Indigenous Data Sovereignty Interest Group.

GIDA works with other Indigenous and allied researchers and practitioners concerned about protecting and promoting Indigenous rights to control data about their peoples lands and resources. The United Nations Declaration on the Rights of Indigenous Peoples provides a necessary but insufficient foundation for the realisation of Indigenous rights and interests in data. The international focus on the protection of individual data and privacy rights falls short of protecting Indigenous Peoples collective rights.

There is an urgent need to develop laws, policy and standards that promote the collective rights of Indigenous Peoples. This panel will bring together experts from Australia, Aotearoa New Zealand, the South Pacific and North America to discuss the challenges, the way forward and policies and practice actions that the RDA community can take to support Indigenous rights.

The panel members are:

MC: Australia: Dr Raymond Lovett, Program leader for Aboriginal and Torres Strait Islander Health at the National Centre for Epidemiology and Population Health, Research School of Population Health, ANU/Maiam nayri Wingara Indigenous Data Sovereignty Collective/Global Indigenous Data Alliance

Ray is an Aboriginal (Wongaibon/Ngiyampaa) social epidemiologist with extensive experience in health services research, public health policy development and health program evaluation. The emphasis of Dr Lovett’s research has involved the integration of Aboriginal and Torres Strait Islander culture with improving health outcomes and health services. He has an additional focus on administrative and health services data to change policy and practice.


Australia: Dr Kalinda Griffiths, Scientia Fellow at the Centre for Big Data Research in Health at the University of New South Wales

Kalinda is a Yawuru woman and epidemiologist. She is a Scientia Fellow at the Centre for Big Data Research in Health at the University of New South Wales, Associate Fusioneer at Cultural Fusion and a Superstar of STEM with Science and Technology Australia. Kalinda’s work addresses complex health disparities through using existing population level linked-
administrative data. Her research currently addresses issues of quality and the utilisation of Indigenous data with a focus on data governance, equity measurement, and cancer care and outcomes.


South Pacific: Jacinta Fa'alili-Fidow, CEO Moana Research NZ/Pacific Indigenous Data Sovereignty Network/Global Indigenous Data Alliance

Jacinta is the Chief Executive Officer for Moana Research, a consultancy company focused on the early years of life, particularly for Pacific peoples.  Having completed her Master of Public Health (Honours), Jacinta is studying towards a PhD exploring resiliency among Pacific children within the Growing Up in New Zealand Study, in which she is also a Pacific Advisor.  Having worked in health for many years, Jacinta chose a topic that aims to reflect the strengths of Pacific children and their families to provide context for their often deficit representation in! the health sector.

Jacinta’s passion to ensure all children have optimal opportunity to thrive in New Zealand, especially Pacific children.  This determination has allowed her to serve in various organisation to help effect change including the Ministry of Health, the Health Research Council and TAHA Pacific Maternal and Child Health.  Currently Moana Research provides an opportunity to realise Pacific-led research and programmes that value Western and traditional science and that seeks to achieve maximum impact through partnerships and successful alliances.


North America: Professor Stephanie Russo Carroll, University of Arizona/ Chair of the RDA International Indigenous Data Sovereignty IG/Chair of the Global Indigenous Data Alliance (GIDA)/US Indigenous Data Alliance

Stephanie Russo Carroll is an Ahtna woman from Alaska, USA. She is based at the University of Arizona where she is Assistant Professor, Public Health Policy and Management, Community, Environment and Policy Department, Mel and Enid Zuckerman College of Public Health (MEZCOPH); Assistant Research Professor, Udall Center for Studies in Public Policy (UC); Assistant Professor, American Indian Studies graduate program, Associate Director and Manager – Tribal Health Program for the Native Nations Institute (NNI) in the UC; and Co-Director for the Center for Indigenous Environmental Health Research, MEZCOH at the University of Arizona (UA). Stephanie's research explores the links between governance, data, the environment, and community wellness. She functions as the UC's liaison to the University's Human Subjects Protection Program, monitoring implementation of the guidelines in UC research projects and participating in broader UA discussions of ethical collaborations with Indigenous Peoples and communities. Stephanie co-founded the US Indigenou​s Data Sovereignty Network and is a founding member of GIDA, the Global Indigenous Data Alliance. Stephanie co-founded the UAs Native Faculty association and the American Indian and Indigenous Health Alliance Club at MEZCOPH, working to support the recruitment and retention of Indigenous students and faculty at the UA. She is on the faculty advisory board for the UA’s Center for Digital Society and Data Studies. Stephanie received her AB from Cornell University and MPH and DrPH from MEZCOPH.

NOTE: No longer able to attend due to employer-imposed travel restrictions. New Zealand: Professor Tahu Kukutai, University of Waikato in New Zealand/T! e Mana Raraunga Maori Data Sovereignty Network/Global Indigenous Data Alliance

Tahu Kukutai (Ngāti Tiipa, Ngāti Kinohaku, Te Aupōuri) is Professor of Demography at the National Institute of Demographic and Economic Analysis, The University of Waikato. Tahu specialises in Māori and indigenous demographic research and has written extensively on issues of Māori population change, Māori identity, official statistics and ethnic and racial classification. Tahu is a founding member of the Māori Data Sovereignty Network Te Mana Raraunga that advocates for Māori rights and interests in data in an increasingly open data environment. She is also Co-Chair of the Research Data Alliance International Indigenous Data Sovereignty Interest Group and co-edited (with John Taylor) Indigenous Data Sovereignty: Toward an Agenda. Tahu has undertaken research with and for numerous iwi, Māori communities, and Government agencies, and provided strategic advice across a range of sectors. Recently she was appointed to the Forum of Chief Science Advisors and Census 2018 External Data Quality Panel. Tahu has degrees in History, Demography and Sociology from The University of Waikato and Stanford University. She was previously a journalist.