Comprehensive Guidelines on Blockchain Applications in Health

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03 Aug 2020
Group(s) submitting the application: 
Meeting objectives: 

This session intends to re-propose the themes scheduled for the last plenary, which could not be discussed due to the difficulties caused by the pandemic: in particular, the session aims at presenting the final results and deliverables of the Blockchain Applications in Health WG, after running its 18 months of activities.

The final WG report includes the 6-month- “state of the Art” report on blockchain use-cases in the healthcare domain and relevant initiatives, presented at P13 in Philadelphia, and the 12-month-report on "Regulatory and Legal issues" discussed at P14 in Helsinki. Additionally, the final report will include a set of Guidelines for blockchain design and implementation in different use cases, as identified and discussed within the WG itself during dedicated TCs and prior meetings. The guidelines will build upon the decision tree preliminarily presented in Philadelphia and further refined and re-discussed in Helsinki. The guidelines aim to facilitate the assessment of blockchain usability in selected and specific use cases, starting from the evaluation of the use cases’ requirements, eventually allowing the selection of the most appropriate design of a blockchain solution for a given use case.

The session will also discuss how to disseminate the Guidelines as result of the working group activity and possible follow-up building on the WG’s results.

Meeting agenda: 


Collaborative Notes Link:


  • Brief introduction to the WG and work plan description
  • Presentation of the group’s final report on ‘Comprehensive Guidelines on Blockchain Applications in Health
  • Discussion with participants on use cases in relation to the provided Guidelines and on the next steps related to dissemination and adoption of the Guidelines
Target Audience: 

For this session, we invite Healthcare Data Scientists dealing with data licensing and patient privacy issues, distributed system experts, privacy and security researchers from informatics and computer science, Policy-makers for Healthcare, Health bioinformatics legal experts, Healthcare and Health Maintenance Organisation administrators, Clinicians (to use data technology to improve practice), Biomedical researchers (using analytical techniques), Pharmaceutical industry researchers and manufacturers, Medical equipment researchers and manufacturers, In silico modelling, testing and clinical trial experts and other interested professionals.

Participants are encouraged to present their specific use cases with regard to possible application of blockchain in their sector during the session.

The Blockchain evaluation framework is available in the file repository on the group’s web page:

Group chair serving as contact person: 
Brief introduction describing the activities and scope of the group: 

The Blockchain Applications in Health WG was promoted by the Health Data IG in order to focus on Blockchain in Health data, with special regard to the potential of such a technology  in enabling data sharing while ensuring compliance with advanced data protection requirements (such as those defined, for instance, by the EU General Data Protection Regulation – GDPR).

After two BoFs held at P9 in Barcelona and at P10 in Montreal, with rising interest in the RDA community, the WG was endorsed and had its first official meeting at P12 in Gaborone, while at P13 in Philadelphia the first goal described in the case statement – the “State of Art report” – was presented and discussed.

The Plenary in Helsinki (P14) was the occasion for further developing the outcomes of the meeting held at P13 and for addressing the second goal provided in the case statement, namely the report on legal regulatory issues.

The final goal of the WG (after 18 months) is to provide a set of comprehensive guidelines on Blockchain Applications in Health.

Short Group Status: 

Recognised & endorsed. At P16 the Blockchain Applications in Health WG will be wrapping up after running 18 months of activity and will present and discuss the final deliverable.

Type of Meeting: 
Informative meeting
Avoid conflict with the following group (1): 
Avoid conflict with the following group (2): 
Meeting presenters: 
Edwin Morley-Fletcher, Mirko De Maldé, Ludovica Durst