status: Recognised & Endorsed

Chair (s): Shanmugasundaram Venkataraman, Celia Alvarez-Romero, Kristan Kang, Anupama Gururaj

Group Email: [group_email]

Secretariat Liaison: Bridget Walker


Adoption and application of the FAIR principles to research data has grown significantly in the few years that they have existed. They have been embraced in many quarters and have paved the way to creating a level playing field for data reuse. Nevertheless, they also pose challenges in some areas of research where reuse may not be an automatic right due to issues of confidentiality, privacy, commercial interests and sensitivities in general.

One sector of research where this is particularly evident is health research, and this proposed working group aims to address global disparities in uptake of the FAIR principles in health research and within health research performing organisations (HRPOs). The work will build upon existing and ongoing work being conducted at the European level (please see below the attached document "D2.3 Guidelines for implementing FAIR open data policy in health research"), and which has in itself identified differences in policies within that region. The aim will be to expand on this work to create a global analysis of policies and to subsequently draw on commonalities to propose a set of guidelines (RDA outputs or recommendations) that can be utilised by HRPOs in their local contexts to address FAIRification of their research data.

 

Please find additional information at these pages from previous RDA engagements:

https://www.rd-alliance.org/bof-assessing-fair-data-policy-implementatio...

https://www.rd-alliance.org/guidelines-health-research-performing-organi...

https://www.rd-alliance.org/wg-guidelines-implementing-fair-open-data-po...

 

Posts

07
April
2021

Invitation to join us at the next HRPO-FAIR working group meeting at RDA VP17

by Shanmugasundaram Venkataraman

Dear All, We are writing to you due to your past interest in this WG through attendance at one of the previous three birds-of-a-feather (BoF) sessions that were held in RDA P13, P14 and VP15 and its official launch as a WG at VP16, or if you have corresponded with us through other channels.
0 | Add new comment
24
February
2021

Re: [hrpo-fair] RDA Virtual Plenary 17 - Notification of Acceptance

by Shanmugasundaram Venkataraman

Yes - great news. Well done everyone! V ______ S. Venkataraman, PhD | Training Lead & Research Data Specialist | Digital Curation Centre | University of Edinburgh | Argyle House, H West | 3 Lady Lawson Street | Edinburgh EH3 9DR | UK e: ***@***.*** | t: +44(0)131 650 2714 | w: www.dcc.ac.uk | @digitalcuration *****Upcoming : IDCC21 and RDA VP17 conferences 19th-22nd April 2021​***** [cid:0aa5616e-8495-4c9a-bdc3-22557ef580ee] [cid:a3215a80-a88b-4a8d-90f9-eef0d4525d18]
0 | Add new comment
23
February
2021

RDA Virtual Plenary 17 - Notification of Acceptance

by Secretariat Group Account

Dear Chairs of the Raising FAIRness in health data and health research performing organisations (HRPOs) WG, Congratulations! Your RDA Virtual Plenary 17 (VP17) session application titled “WG on Raising FAIRness in health data and health research performing organisations” has been approved by the Technical Advisory Board (TAB). Please consider this your official notification of acceptance.
2 | Add new comment
04
February
2021

Re: [hrpo-fair] Rescheduling first meeting of the HRPO-FAIR RDA WG

by Shanmugasundaram Venkataraman

Dear All, thank you to those that indicated preferred times in the Doodle. The best option appears to be next Wed 10th Feb at 1000 UTC. Apologies to those that will find this time unsuitable, especially from the Americas. A Zoom session for 1 hr has been set up, which you will be able to join using the following instructions: Topic: HRPO-FAIR Initial Meeting Time: Feb 10, 2021 10:00 London Join Zoom Meeting https://ed-ac-uk.zoom.us/j/84575719861 Meeting ID: 845 7571 9861
0 | Add new comment
29
January
2021

RDA VP17 Session proposal submission

by Alexandra Delipalta

Dear Raising FAIRness in health data and health research performing organisations (HRPOs) WG members,    Thank you for your session proposal for Virtual Plenary 17 titled ‘WG on Raising FAIRness in health data and health research performing organisations’. A review of all submitted proposals is now underway by the RDA Technical Advisory Board, with notifications of acceptance planned to be sent by 26 February.   
0 | Add new comment
25
January
2021

Rescheduling first meeting of the HRPO-FAIR RDA WG

by Shanmugasundaram Venkataraman

Dear All, after an initial attempt to schedule a virtual meeting at the end of 2020, we want to try again in the second week of February. Please see this Doodle poll for possible dates and times - your participation would be most welcome to discuss the first WG task of a global landscape analysis.
1 | Add new comment
11
December
2020

Re: [hrpo-fair] Scheduling an initial meeting for the HRPO-FAIR RDA WG

by Shanmugasundaram Venkataraman

Dear colleagues, due to insufficient consensus, we have decided to postpone organising this meeting until the new year, hopefully the end of Jan. We will keep you updated on developments in the meantime. Apologies for the inconvenience. Many thanks and best wishes, the HRPO-FAIR WG co-chairs Celia Alvarez-Romero, Anupama Gururaj, Kristan Kang and S. Venkataraman ______
0 | Add new comment
03
December
2020

Scheduling an initial meeting for the HRPO-FAIR RDA WG

by Shanmugasundaram Venkataraman

Dear colleagues, after our recent kick-off meeting at the RDA VP16, we want to start progressing the WG's work plan further. (Thank you to those that were able to join us on the day or those that were able to catch the recording of the session!) The proposed work plan can be found in the case statement with the caveat that the timeline shown there is shorter than what we envisage now - 18 months for the lifetime of the WG instead of 12 months.
1 | Add new comment
10
November
2020

[HRPO-FAIR] Participation to RDA VP16

by Celia Alvarez-Romero

Dear all, The RDA Plenary 16 is taking place from November 9-12. Following BoF sessions at the three previous plenaries, the *Raising FAIRness in health data and health research performing organisations Working Group* has now been endorsed and we will be participating through a breakout session on *Thursday 12 November 2020, 5:00 – 6:30 PM UTC*. This will be our first session as a WG and we invite you to join us! To know more about our meeting objectives and agenda, please visit
0 | Add new comment
10
September
2020

Invitation to join the new RDA "Raising FAIRness in Health Research Performing Organisations" WG

by Shanmugasundaram Venkataraman

Dear All, We are writing to you due to your past interest in this topic through attendance at one of the previous three birds-of-a-feather (BoF) sessions that were held in RDA plenaries (P13, P14 and VP15).
0 | Add new comment

Pages