status: Recognised & Endorsed
Chair (s): Anne Cambon-Thomsen
Group Email: [group_email]
Secretariat Liaison: Bridget Walker
This is the subgroup of the RDA-COVID-19 working group focusing on Legal and Ethical aspects.
Co-chair assigned: Anne Cambon-Thomsen
Moderator(s): Alexander Bernier, John Brian Pickering,
Email: rda-covid19-legal-ethical@rda-groups.org
Useful Information for RDA COVID-19 Legal and Ethical Subgroup
Legal and Ethical subgroup priorities:
- understand any cross-cutting ethical and legal issues in the identification, curation and sharing of (personal) data
- provide guidance to researchers and policy makers in terms of best practice ethical and legal data exploitation
- provide support to researchers wanting to exploit available data resources
- provide support to data providers wanting to publicise and share their data
To provide feedback on the "RDA COVID-19 Guidelines and Recommendations":
The current draft of the "RDA COVID-19 Guidelines and Recommendations" can be found in the Outputs section of the main COVID-19 WG webpage; be sure to select the most current version that is attached for review, and provide comments using the "Add new comment" link below the attachments.
Posts
28
October
2022
Invitation to participate in 'A Decade of Data: 10 Years of the RDA' events and activities
by Connie Clare
Good day, The RDA Secretariat would like to invite the RDA Covid-19 groups to participate in ‘A Decade of Data’: Celebrating 10 Years of the Research Data Alliance’. 10 months to celebrate 10 years of the RDA0 | Add new comment
17
March
2021
FW: RDA Virtual Plenary 17 - Scheduling Notification
Dear colleagues, Find below the scheduling details for the RDA “Vaccine Data & Public Health Decision-Making” Best, Alexander Sent from Mail for Windows 10 - Show quoted text -From: Secretariat Sent: March 12, 2021 7:05 AM To: ***@***.***-tlse3.fr; Alexander Bernier; ***@***.*** Subject: RDA Virtual Plenary 17 - Scheduling Notification Dear Chairs of the RDA-COVID19-Legal-Ethical,0 | Add new comment
23
February
2021
RDA Virtual Plenary 17 - Notification of Acceptance
Dear Chair of the RDA-COVID19-Legal-Ethical WG, Congratulations! Your RDA Virtual Plenary 17 (VP17) session application titled ‘The issues actually encountered in sharing COVID-19 health related data across borders: lack of solutions or lack of dialogue?’ has been approved by the Technical Advisory Board (TAB). Please consider this your official notification of acceptance.0 | Add new comment
23
February
2021
RDA Virtual Plenary 17 - Notification of Acceptance
Dear Chairs of the RDA-COVID19 Legal-Ethical WG Congratulations! Your RDA Virtual Plenary 17 (VP17) session application titled COVID-19 Vaccine Data & Public Health Decision-making has been approved by the Technical Advisory Board (TAB). Please consider this your official notification of acceptance.0 | Add new comment
29
January
2021
RDA VP17 Session proposal submission
Dear RDA-COVID19, RDA COVID-19 Epidemiology, RDA-COVID19-Clinical, RDA-COVID19-Social-Sciences, RDA-COVID19-Community-participation and RDA-COVID19-Legal-Ethical members, Thank you for your session proposal for Virtual Plenary 17 titled 'Community participation and the RDA COVID-19 Recommendations and Guidelines'. A review of all submitted proposals is now underway by the RDA Technical Advisory Board, with notifications of acceptance planned to be sent by 26 February.0 | Add new comment
29
January
2021
RDA VP17 Session proposal submission
Dear RDA-COVID19-Legal-Ethical members, Thank you for your session proposal for Virtual Plenary 17 titled ‘RDA P17- COVID-19 Vaccine Data & Public Health Decision-making’. A review of all submitted proposals is now underway by the RDA Technical Advisory Board, with notifications of acceptance planned to be sent by 26 February. Please feel free to contact the RDA Secretariat at enquiries@rd-alliance.org with any questions or concerns you have regarding your submission. Thank you.0 | Add new comment
29
January
2021
RDA VP17 Session Proposal Submission
Dear RDA-COVID19-Legal-Ethical group members, Thank you for your session proposal for Virtual Plenary 17 titled ‘The issues actually encountered in sharing COVID-19 health related data across borders: lack of solutions or lack of dialogue?’. A review of all submitted proposals is now underway by the RDA Technical Advisory Board, with notifications of acceptance planned to be sent by 26 February.0 | Add new comment
26
January
2021
Session proposal for RDA P17
Dear all, After interaction with some of you, members of the RDA Working group COVID-19 legal-ethical, we decided to submit a session proposal for the RDA plenary meeting P17 (hybrid or virtual) in April (20-22), that you can either see on the RDA website of the group https://www.rd-alliance.org/plenaries/rda-17th-plenary-meeting-edinburgh... or on this google doc :1 | Add new comment
04
November
2020
Conseil d'État Decision
Dear colleagues, Find attached the text of the French Conseil d’État decision. With best wishes, Alexander Sent from Mail for Windows 101 | Add new comment
02
November
2020
RDA-COVID-19 Survey - last call!
Dear Colleague, Today is the last day (closing 11/2 at midnight UTC) to add your voice to the working group survey. I hope you will take 10 minutes or so to complete this if you haven't yet; and is intended to inform RDA the better to support us all for future initiatives like COVID-19. Sincerely Brian J Brian Pickering ORCID 0000-0002-6815-2938 Pronouns he/him https://www.ecs.soton.ac.uk/people/jbp1g100 | Add new comment