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26
June
2017

RDA/NISO Privacy Task Group A/B

by Nettie Lagace

Calendar event for TG A&B conference call RDA/NISO Privacy Task Group A/B Scheduled: Jul 5, 2017, 10:00 AM to 11:00 AM Location: US: preferred 973-935-2037 / backup 1-877-375-2160 UK: preferred 020-3107-0236 / backup 080-8234-8621 Global numbers can be found via http://bit.ly/niso-dialin Conference code: 10711493
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15
June
2017

RDA Data Share Fellow Re-Introduction

by Sam Grabus

Hello RDA/NISO Privacy Implications of Research Data Sets Interest Group chairs, To re-introduce myself, I am Sam Grabus, a 2017-2018 Data Share fellow. Thanks again for supporting my proposed project, which focuses on facilitating data sharing through the development of best practices for IRBs regarding data sharing and rights management metadata. I attended the RDA Data Share orientation up in Troy, and began digging into some background reading to inform next steps. As a reminder, this was my proposed timeline for the project (though this is now a 1-year fellowship):
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15
June
2017

Setting up meetings for IG task groups

by Nettie Lagace

hi all, We are hoping that the task groups (further described on the group wiki pages at https://www.rd-alliance.org/group/rdaniso-privacy-implications-research-...) can have a few meetings in the coming weeks to progress the ideas that many of you have contributed so far. Here are a few Doodle polls in this regard - can you please fill them out for the groups you’d like to participate in, by Wednesday June 21?
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12
May
2017

Notes and next steps from P9, Barcelona

by Nettie Lagace

Dear all, The RDA/NISO Privacy Implications of Research Data Sets IG had a productive in-person meeting in Barcelona on April 5. I apologize for the lateness of these notes. We hope that all of you will be willing to continue to participate in one of these task groups, which all were able to work in Barcelona. Task group leaders will follow up with the full IG in the near future with more information on specific times for conference calls to continue this work.
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19
April
2017

Health and medical data sharing webinar series in Australia

by Kate LeMay

Hi all In case anyone is interested, we have an upcoming health and medical webinar series. We are based in Australia, so some information is location specific, but some will be relevant to health research and data sharing in other countries. The webinars are recorded so if they're in the middle of the night for you, just register and we send everyone who has registered links to the recordings after. Here is the information: The Australian National Data Service (ANDS )
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05
April
2017

Managing and publishing sensitive data

by Kate LeMay

Hi all, Related to the great presentation by Thomas at the Plenary meeting today, we had a webinar recently that covers a lot of the same issues of managing access to sensitive data. It covered the social science archives in Australia and the US, but the principles can be applied more widely than social sciences. You can find it the recording and slides here: - Recording (Youtube) - Prof George Alter (Research Professor, ICPSR & Visiting Professor, ANU) - Sharing confidential data
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28
March
2017

meeting

by Eleanor Mattern

Our meeting is 16:00 in Barcelona on Wednesday 5 April.
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28
March
2017

GoToMeeting connection info Re: [rdaniso-privacy] Agenda for IG meeting at P9, Barcelona

by Nettie Lagace

Dear IG members, We are looking forward to our meeting at P9 next week! For those of you who can’t be there in person, here is the GoToMeeting connection information. Our meeting is 16:00 in Barcelona on Wednesday 5 April. I’ve set up a few cities at https://www.timeanddate.com/worldclock/converter.html?iso=20170405T14000... to check your local time. CONNECTION INFORMATION:
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09
March
2017

Agenda for IG meeting at P9, Barcelona

by Nettie Lagace

Dear IG members, As shown on the P9 Programme at https://www.rd-alliance.org/plenaries/rda-ninth-plenary-meeting-barcelon..., the meeting of our IG is Wednesday 5 April from 16:00-17:30 https://www.rd-alliance.org/ig-rdaniso-privacy-implications-research-dat...
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09
March
2017

Re: RDA/NISO Data Privacy IG News: Merging of Frameworks/Policy and Practice task groups

by Bonnie Tijerina

Hello RDA/NISO Privacy Implications of Research Data Sets IG Members: We’ve merged the Frameworks/Policy and Practice task groups and created the new Policy Frameworks to Practice Task Group with the following outputs: A. Collection of Value Statements and Codes of Ethics B. Personas C. Resources for Stakeholders You can view more details on our aims and outputs and you can add your name to help out here
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