status: Recognised & Endorsed

Chair (s): Todd Carpenter, Bonnie Tijerina, Joerg Geiger, Freyja Vandenboom

Group Email: [group_email]

Secretariat Liaison: enquiries@rd-alliance.org


This IG starter out as a Working Group, to explore issues related to scientific research data sets that contains human subject information, as well as related datasets that have the potential to be combined in a way that can expose private information. The goal of the group is to develop a framework for how researchers and repositories should appropriately manage human-subject datasets, to develop a metadata set to describe the privacy-related aspects of research datasets, and to build awareness of the privacy implications of research data sharing. While privacy is related to the ethical, legal and data publishing issues surrounding data management of which privacy is a part, this working group is focused specifically on privacy-related concerns.

After submitting their Case Statement, the group decided to become an Interest Group, to enable even broader discussion.

Events

08
February
2016

Planning call to discuss the Joint RDA-NISO Working Group

We would like to arrange a conference call to discuss the organization of the group on Monday, February 8 at 10:00 AM EST (GMT -5).

The agenda of the call will be: