status: Recognised & Endorsed

Chair (s): Anthony Chang, Edwin Morley-Fletcher, Yannis Ioannidis, Leslie McIntosh-Borrelli

Group Email: [group_email]

Secretariat Liaison: enquiries[at]rd-alliance.org


The proposed Interest Group on “Health Data” (HD-IG) is a long-term initiative in the framework of RDA. It follows a rather successful BoF Session during the 6th RDA Plenary Meeting in Paris, which was attended by over 35 researchers and professionals from diverse backgrounds, who discussed several relevant issues, expressed significant interest in forming the proposed Interest Group, and helped shape its focus as presented here. The Interest Group will fill a gap in the RDA subject map formed by its current WGs and IGs, as at the moment, there is no RDA group focusing on the intricacies of Health Data, especially as it relates to privacy and security issues in Healthcare. Establishment of this IG will also enrich the set of communities involved in and contributing to RDA, as there are several professions as well as research disciplines that revolve around Health Data.

 

 

 

Link to TAB review

Posts

07
April
2021

[hrpo-fair] Invitation to join us at the next HRPO-FAIR working group meeting at RDA VP17

by Celia Alvarez-Romero

Dear All, We are writing to you due to your past interest in this WG through attendance at one of the previous three birds-of-a-feather (BoF) sessions that were held in RDA P13, P14 and VP15 and its official launch as a WG at VP16, or if you have corresponded with us through other channels. We have organised a session at the upcoming RDA VP17 and which we cordially invite you to attend: our session "WG on Raising FAIRness in health data and health research performing organisations" has been
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30
March
2021

Last Chance for discounted RDA P17 registration rate!

by Jamie Lupo-Petta

  Early Bird pricing ends 2 April. Are you planning to attend the upcoming RDA Virtual Plenary 17?  With participants from 145+ countries, this exciting event allows our members to interact - a diverse group of colleagues coming together to build social and technical bridges across the data community. RDA P17 is just three weeks away, and we’d like to remind you that the early bird deadline to register is this Friday, 2 April. After this date, the full registration rate will increase from £150 to £250.  
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24
March
2021

RDA VP17 Programme Now Available

by Jamie Lupo-Petta

  Dear members of the Health Data Interest Group:   The programme for RDA Virtual Plenary 17 (VP17) is now available. We look forward to seeing you all virtually for over 100 sessions, including many repeat sessions on 22 and 23 April, in an effort to accommodate a wider range of time zones.  
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20
March
2021

TEHDAS: Joint Action Towards the European Health Data Space

by Rita Rb-Silva

Joint Action Towards the European Health Data Space (TEHDAS) is a project co-funded by the EU’s third health programme and 26 participating European countries.
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26
February
2021

RDA Virtual Plenary 17 - Notification of Acceptance

by Secretariat Group Account

Dear Chairs of the Health Data IG The Technical Advisory Board (TAB) has completed its review of session applications for the RDA Virtual Plenary 17 (VP17) and has accepted your application titled Achieving anonymity and correcting bias with synthetic data through generative AI. Please consider this your official notification of acceptance. Congratulations!
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05
February
2021

[hrpo-fair] First meeting of the HRPO-FAIR RDA WG

by Celia Alvarez-Romero

Dear all, There will be a meeting along the lines of the RDA WG on Raising FAIRness in health data and health research performing organisations. I hope that it will be of your interest to participate. The purpose of this meeting is to review the current landscape for *FAIR adoption of health research data* taking into consideration levels of *privacy and ethical considerations* granted to such data in regions around the world. This review will be based on existing and recently
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29
January
2021

RDA VP17 Session Proposal Submission

by Jamie Lupo-Petta

  Dear Health Data Interest Group members,   Thank you for your session proposal for Virtual Plenary 17 titled ‘Achieving anonymity and correcting bias with synthetic data through generative AI’.  A review of all submitted proposals is now underway by the RDA Technical Advisory Board, with notifications of acceptance planned to be sent by 26 February.   Please feel free to contact the RDA Secretariat at enquiries@rd-alliance.org with any questions or concerns you have regarding your submission. Thank you.
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16
December
2020

[FAIR4Health] [FHIR4FAIR] FAIR track in virtual 26th HL7 FHIR Connectathon

by Celia Alvarez-Romero

Dear all. I want to inform you that, in the context of the virtual 26th HL7 FHIR Connectathon , from FAIR4Health European project , a track called FAIR track has been proposed, led by Alicia Martínez-García (Andalusian Health Service from Spain), and Giorgio Cangioli (HL7 Europe). In this track, we hope to collect and discuss experiences, known challenges, and proposed solutions regarding implementing the FAIR principles using the HL7 FHIR standard. This track's outcomes could be
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04
December
2020

P17 Participation Opportunities

by Jamie Lupo-Petta

  Dear Interest Group members,   With the planning of RDA VP17 upon us, we would like to bring a couple of time-sensitive opportunities to your attention:   Open Call for Co-located Events
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10
November
2020

[HRPO-FAIR] Participation to RDA VP16

by Celia Alvarez-Romero

Dear all, The RDA Plenary 16 is taking place from November 9-12. Following BoF sessions at the three previous plenaries, the *Raising FAIRness in health data and health research performing organisations Working Group* has now been endorsed and we will be participating through a breakout session on *Thursday 12 November 2020, 5:00 – 6:30 PM UTC*. This will be our first session as a WG and we invite you to join us! To know more about our meeting objectives and agenda, please visit
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