status: Recognised & Endorsed
Chair (s): Anthony Chang, Edwin Morley-Fletcher, Yannis Ioannidis, Leslie McIntosh-Borrelli
Group Email: [group_email]
Secretariat Liaison: enquiries[at]rd-alliance.org
The proposed Interest Group on “Health Data” (HD-IG) is a long-term initiative in the framework of RDA. It follows a rather successful BoF Session during the 6th RDA Plenary Meeting in Paris, which was attended by over 35 researchers and professionals from diverse backgrounds, who discussed several relevant issues, expressed significant interest in forming the proposed Interest Group, and helped shape its focus as presented here. The Interest Group will fill a gap in the RDA subject map formed by its current WGs and IGs, as at the moment, there is no RDA group focusing on the intricacies of Health Data, especially as it relates to privacy and security issues in Healthcare. Establishment of this IG will also enrich the set of communities involved in and contributing to RDA, as there are several professions as well as research disciplines that revolve around Health Data.
Link to TAB review
File Repository
RDA_VP19_HDIG session_The usage of digital twins in healthcare for personalised care_20_06_2022
The folder contains the presentations of the Health Data IG session at VP19 (Seoul) on "The usage of digital twins in healthcare for personalised medicine" (20th June 2022): EDWIN MORLEY-FLRDA_VP19_HDIG session_The usage of digital twins in healthcare for personalised care_20_06_2022
The folder contains the presentations of the Health Data IG session at VP19 (Seoul) on "The usage of digital twins in healthcare for personalised medicine" (20th June 2022): EDWIN MORLEY-FL| Attachment | Size |
|---|---|
 Health Data IG_The usage of digital twins in healthcare for personalised care_RDA VP19_20th June 2022.pdf | 1.01 MB |
| HDIG_IDW2022_RDAP19_LiesbetGeris.pdf | 21.09 MB |
RDA_VP19_HDIG session_The usage of digital twins in healthcare for personalised care_20_06_2022
The folder contains the presentations of the Health Data IG session at VP19 (Seoul) on "The usage of digital twins in healthcare for personalised medicine" (20th June 2022): EDWIN MORLEY-FL| Attachment | Size |
|---|---|
| Health Data IG_The usage of digital twins in healthcare for personalised care_RDA VP19_20th June 2022.pdf | 1.01 MB |
| HDIG_IDW2022_RDAP19_LiesbetGeris.pdf | 21.09 MB |
VP16 Transparency and Trust in Health Data
Edwin Morley-Fletcher, presentation on "Current difficulties in trustfully and lawfully sharing anonymous and pseudonymous health data"| Attachment | Size |
|---|---|
| Morley-Fletcher E. (2020)_ Transparency and Trust in Health Data_Health Data Interest Group @VP16_Costa Rica_11 November 2020.pdf | 356.68 KB |
P13 HDIG Presentation on Synthetic Data in Medicine
| Attachment | Size |
|---|---|
| RDA SYN DATA_Davide Zaccagnini.pdf | 6.02 MB |
AIMED annuncement London September 11-13 2018
| Attachment | Size |
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 AIMED annuncement London September 11-13 2018.pptx | 91.85 KB |
HDIG P11 Berlin
Presentations from the HDIG session at P11 in Berlin, March 2018. Includes: - “RDA Adoption and Training Guide for Reproducible Data Service Workflows”: new WG - a first draft report on the GDPR c| Attachment | Size |
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| 2018_Health Data WG Reproducible Data Brokerage.pdf | 3.48 MB |
 Draft HEALTH DATA IG – RDA data protection .docx | 37.24 KB |