status: Recognised & Endorsed

Chair (s): Anthony Chang, Edwin Morley-Fletcher, Yannis Ioannidis, Leslie McIntosh-Borrelli

Group Email: [group_email]

Secretariat Liaison: enquiries[at]rd-alliance.org


The proposed Interest Group on “Health Data” (HD-IG) is a long-term initiative in the framework of RDA. It follows a rather successful BoF Session during the 6th RDA Plenary Meeting in Paris, which was attended by over 35 researchers and professionals from diverse backgrounds, who discussed several relevant issues, expressed significant interest in forming the proposed Interest Group, and helped shape its focus as presented here. The Interest Group will fill a gap in the RDA subject map formed by its current WGs and IGs, as at the moment, there is no RDA group focusing on the intricacies of Health Data, especially as it relates to privacy and security issues in Healthcare. Establishment of this IG will also enrich the set of communities involved in and contributing to RDA, as there are several professions as well as research disciplines that revolve around Health Data.

 

 

 

Link to TAB review

File Repository

16
February
2021

VP16 Transparency and Trust in Health Data

by Ludovica Durst

Edwin Morley-Fletcher, presentation on "Current difficulties in trustfully and lawfully sharing anonymous and pseudonymous health data"

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PDF icon Morley-Fletcher E. (2020)_ Transparency and Trust in Health Data_Health Data Interest Group @VP16_Costa Rica_11 November 2020.pdf356.68 KB
09
May
2018

HDIG P11 Berlin

by Ludovica Durst

Presentations from the HDIG session at P11 in Berlin, March 2018. Includes: - “RDA Adoption and Training Guide for Reproducible Data Service Workflows”: new WG - a first draft report on the GDPR c

AttachmentSize
PDF icon 2018_Health Data WG Reproducible Data Brokerage.pdf3.48 MB
File Draft HEALTH DATA IG – RDA data protection .docx37.24 KB
13
November
2017

BoF on Health Data and Blockchain

by Ludovica Durst

Second BoF on "Making use of Blockchain in Dealing with Health Data" Presentations: - Introduction (E. Morley-Fletcher)

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PDF icon Blockchain BoF_RDA P10_21st September 2017_introduction.pdf1013.43 KB
13
November
2017

HDIG P10 Montreal Presentations

by Ludovica Durst

HDIG Session on "Health Data Mapping and Diverging Trends In Health Data Protection" Presentations: - Introduction (E.

AttachmentSize
PDF icon Health Data IG_RDA P10_21st September 2017_introduction.pdf452.79 KB
PDF icon RDA 10th Plenary_Montreal_Sep212017_data reproducibility.pdf2.19 MB
PDF icon HDIG_RDA10_2017-09-21_data protection regulations.pdf535.46 KB
11
April
2017

P9 Barcelona Health Data IG session presentations

by Ludovica Durst

This Folder contains the presentations shown at the Health Data Interest Group session in Barcelona, RDA P9, 6th April 2017, on "Meaningful Health Data for Research and for Industry": Edw

AttachmentSize
PDF icon EMF_Health Data IG_RDA9_6 April 2017.pdf952.19 KB
PDF icon RPanetta_HDIG_Barcelona April 6.pdf5.6 MB
PDF icon RWilson_HealthDataIG_Barcelona 6 April.pdf755.48 KB
PDF icon JGeiger_HDIG_Barcelona 6 April.pdf320.64 KB
PDF icon slideshow_Health_Data_Ecosystem.pdf1.4 MB

Pages