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Richard Milne

I'm a sociologist of science, technology and medicine. I am Senior Social Scientist in the Society and Ethics Research group at the Wellcome Genome Campus/Sanger Institute, and hold a research post in the Institute of Public Health at the University of Cambridge. I have expertise in the social and ethical considerations associated with the development of data-driven diagnostic technologies, specifically related to ageing and cognitive decline and the sharing and use of large-scale genomic data.

My empirical research primarily draws on qualitative research methods, including focus groups, interviews and ethnographic approaches. However, at the Sanger, I also lead analysis of the Your DNA, Your Say study of global public attitudes towards genomic data sharing. I lead ELSI workpackages within two Innovative Medicines Initiative projects on Alzheimer's disease, and work on ethics within Alzheimer Research UK's Early Detection of Neurodegeneration initiative, and am a member of the Ethics and Feedback Advisory Group for the UK government's Accelerating Detection of Disease (ADD) project. I am also an advisor to the European Health Data and Evidence Network (EHDEN), and previously co-led the University of Cambridge Ethics of Big Data research group.

I received my PhD from University College London in 2010 and have held posts at UCL, the University of Sheffield, Birkbeck University of London and on secondment at the PHG Foundation health policy think tank.

Interest Group
Stage: IG Established
Secretariat Liaison: Bridget Walker
TAB Liaison: James Savage
Ethical and social issues with respect to data archiving, sharing, and reuse cut across many of the technical and policy work of the rest of the RDA.  Such issues are complementary to but separate fr...
Working Group
Stage: WG Maintaining Deliverables
TAB Liaison: Sara El-Gebali
This is the subgroup of the RDA-COVID-19 working group focusing on Omics. Useful Information for RDA COVID-19 Omics Subgroup Omics subgroup priorities: A set of guideline documents, highlighting th...
Working Group
Stage: WG Maintaining Deliverables
TAB Liaison: Isabelle PERSEIL
This is the subgroup of the RDA-COVID-19 working group focusing on Social Sciences. Co-chair assigned:  Ingrid Dillo Moderator(s):  Iryna Kuchma, Amy Pienta Email:  rda-covid19-socialscience...
Working Group
Stage: WG Maintaining Deliverables
Secretariat Liaison: Bridget Walker
TAB Liaison: Sara El-Gebali
I.  RDA COVID-19 Working Group Objectives II.  Group & Website Navigation III.  Weekly Webinar RDA COVID-19 Updates – Completed I.  RDA COVID-19 Working Group Objectives The overarchi...
Regional Group
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