Meaningful Health Data for Research and for Industry - Outcomes from the IG Health Data meeting at the RDA 9th Plenary

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02 May 2017

Meaningful Health Data for Research and for Industry - Outcomes from the IG Health Data meeting at the RDA 9th Plenary

02 May 2017

A lively discussion has taken place during the Health Data Interest Group meeting, held at Barcelona RDA P9, within a session dedicated to Meaningful Health Data for Research and for Industry.

Two initial topics were defined: How to define anonymisation and pseudonymisation of Health Data, and Requirements of Open Science, respectively introduced by Rocco Panetta (Secretary General of Italian Compliance Forum) and Becca Wilson (Bristol University, UK).

Further themes have been: Data provenance, data comparability and data traceability in biotechnology, introduced by Joerg Geiger (Manager Systems Biology and Biobanking at the University of Wuerzburg) ; Mapping ongoing initiatives in the Health Data domain, by Leslie D. McIntosh (Professor of Health Informatics at Washington, University School of Medicine).

The latter effort has been considered to be particularly useful, and contacts will be established on this with the WHO.

An additional activity promoted by the Health Data Interest Group has been the BoF session dedicated to Making use of Blockchain in dealing with Health Data. This initiative was met with significant success, and the two introductory talks, by Edwin Morley-Fletcher, co-chair of the Health Data IG, and Aggelos Kiayias, Head of Cyber Security and Privacy at the University of Edinburgh, UK, were followed by an animated discussion. Given the interest raised by both presentations, a further BoF will be organised at the next RDA Plenary 10, in view of possibly creating a dedicated Working Group on Blockchain and Health.

To find out more and follow the discussion join the RDA Health Data Interest group here: https://www.rd-alliance.org/groups/health-data.html

View the breakout session meeting pages: 

 IG Health Data: Meaningful Health Data for Research and for Industry 

  BoF on Health Data and Blockchain: Making use of Blockchain in dealing with Health Data


Author: Edwin Morley-Fletcher, Lynkeus and co-chair of the Health Data IG