RDA/NISO Privacy Implications of Research Data Sets IG Meeting
A short introduction describing the activities and the scope of the group:
The joint RDA-NISO Interest Group on the Privacy Implications or Research Data Sets is exploring ways in which the creation, storage, sharing, and combination of, data sets might put at risk the privacy of human-subjects and ways that the research community can mitigate those risks. The interest group is focused on a variety of legal, policy and systematic ways in which privacy can be protected. Several outputs of the group are envisioned, including an overarching framework, a bibliography, guidance on consent and legal frameworks, as well as metadata extensions describing privacy information. The IG is also interested exploring ways to work with other IGs and WGs focused on specific topics that might have privacy implications, such as Health Data, Metadata, Ethics, and Security.
Additional links to informative material related to the group i.e. group page, Case statement, working documents etc:
The Interest group Case Statement is available on the RDA website: https://www.rd-alliance.org/groups/rdaniso-privacy-implications-research...
The Group Wiki is: https://www.rd-alliance.org/group/rdaniso-privacy-implications-research-...
Information and background documents on the IG Task Groups working on the output documents are available here: https://www.rd-alliance.org/group/rdaniso-privacy-implications-research-...
Welcome & Introductions
Recap of Charge & IG Status
Breakout discussions of the IG Task Groups
Report out of breakout discussions
Discussion of moves to complete the IG Reports
Report of liaisons with WG on Data Security & Trust, the Health Data IG, Legal Interoperability IG, Metadata IG
Researchers working with human subject data, repository managers, administrators, members. Participants are encouraged to read ##and comment on## the Task Group draft documents prior to the meeting.
Group chair serving as contact person: Todd Carpenter
Type of meeting: Working meeting
Session Room: Mansfield 2
Session Time: Wednesday 20 September, Breakout 4, 11:00 - 12:30
Collaborative session notes:
Session slides and materials:
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