IG RDA/NISO Privacy Implications of Research Data Sets 9th Plenary meeting

You are here

Meeting title

Privacy Implications of Research Data Sets IG Plenary Meeting

Short introduction describing the activities and the scope of the group: 

The joint RDA-NISO Interest Group on the Privacy Implications or Research Data Sets is exploring ways in which the creation, storage, sharing, and combination of, data sets might put at risk the privacy of human-subjects and ways that the research community can mitigate those risks. The interest group is focused on a variety of legal, policy and systematic ways in which privacy can be protected. Several outputs of the group are envisioned, including an overarching framework, a bibliography, guidance on consent and legal frameworks, as well as metadata extensions describing privacy information. The IG is also interested exploring ways to work with other IGs and WGs focused on specific topics that might have privacy implications, such as Health Data, Metadata, Ethics, and Security.

Additional links to informative material related to the group i.e. group page, Case statement, working documents etc

The Interest group Case Statement is available on the RDA website: https://www.rd-alliance.org/groups/rdaniso-privacy-implications-research...

Information about the three Task Groups, that have begun working on aspects of these issues are available on the IG Wiki: https://www.rd-alliance.org/group/rdaniso-privacy-implications-research-...

Meeting objectives

During this plenary meeting, the group will focus attention on the progress of the Task Group's and their activities. It will also serve as an opportunity for task group members to discuss their projects, and outputs. Additionally, it will provide an opportunity to hear from other related IGs and WGs and explore potential partnerships.

Meeting agenda

Welcome & Introductions
Recap of Charge & IG Status
Breakout discussions of the IG Task Groups
Report out of breakout discussions
Discussion of next steps
Report of liaisons with 
Discussion of outreach to other WGs & IGs


Researchers working with human subject data, repository managers, administrators, members of institutional IRBs, policy experts and legal counsels might all be working with potentially privacy-challenged data

Group chair serving as contact person: Todd Carpenter 

Type of meeting: Working meeting

Group maturity: 6-12 months

Remote access information:

Gotomeeting Link: https://global.gotomeeting.com/join/894505341                                                                                           

Access Code: 894-505-341

Australia: +61 2 8355 1038

Austria: +43 1 2060 92964
Belgium: +32 28 93 7002
Canada: +1 (647) 497-9373
Denmark: +45 43 31 47 79
Finland: +358 972 52 2971
France: +33 170 950 590
Germany: +49 69 5880 7802 72
Ireland: +353 15 360 756
Italy: +39 0 291 29 46 27
Netherlands: +31 707 709 520
New Zealand: +64 9 913 2226
Norway: +47 21 93 37 37
Spain: +34 912 71 8488
Sweden: +46 775 757 471
Switzerland: +41 445 1124 85
United Kingdom: +44 20 3713 5011
United States: +1 (669) 224-3318