IG RDA/NISO Privacy Implications of Research Data Sets

You are here

Meeting title
Privacy Implications of Research Data Sets Outputs & Next Steps meeting

Short introduction describing the activities and the scope of the group

The goal of this interest group is to explore how researchers and repositories should appropriately manage human-subject datasets in a way that can simultaneously support sharing while protecting the privacy of those human subjects. The group also seeks tobuild awareness of the privacy implications of research data sharing. While privacy is related to the ethical, legal and data publishing issues surrounding data management of which privacy is a part, this working group is focused specifically on privacy-related concerns. The group has done some initial exploratory work

Additional links

RDA/NISO Privacy Implications of Research Data Sets Interest Group: https://rd-alliance.org/groups/rdaniso-privacy-implications-research-dat...

RDA/NISO Privacy Implications of Research Data Sets Interest Group Case Statement:
https://www.rd-alliance.org/group/rdaniso-privacy-implications-research-...

RDA/NISO Privacy Implications of Research Data Sets IG Output Draft Documents :
https://docs.google.com/document/d/1fOX0jrU8NJdbgrnXkwV7gAeeR90xnhk-XkUA...

Meeting objectives

The meeting objectives will be to do a final review of the draft outputs, and finalize them for submission as final outputs of the group for release. We also will seek to determine future directions of the interest group.

Meeting agenda

Welcome and introductions

Review of Draft outputs and changes since the plenary in Berlin
- Collection of Value Statements and Codes of Ethics
- Use Cases incorporating Personas
- Resources for stakeholders - RDA-NISO Data Privacy Laws & Regulations
- Resources for stakeholders - NISO-RDA Data Privacy Glossary
- Other resources for stakeholders
Finalization of these outputs and next steps

Report of the Metadata Joint meeting (also proposed for RDA P11)

Group reports

Discussion of Interest Group's Next Steps and further projects for the IG

Call for co-chairs of the group

Reports from liaisons

Audience: Please specify who is your target audience and how they should prepare for the meeting

Researchers, repository managers, publishers, data scientists, administrators overseeing these people/organizations, working group participants.

Please read and comment on the draft outputs, either via the Google Doc Commenting features on the document or its various sub documents - all linked, or via the group wiki pages or email lists. In addition, please reach out to the co-chair with ideas for subsequent projects. Also, if you know someone interested in this domain and would be willing to step into a role as co-chair, please contact Todd Carpenter.

Group chair serving as contact person
Todd Carpenter

Type of meeting
Working meeting