IG Ethics and Social Aspects of Data - RDA 12th Plenary Meeting

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Meeting title
Data Reuse Ethics : Specifying Roles and Responsibilities

Collaborative Session Notes
(link to be added)

Short introduction describing the activities and the scope of the group

The Ethics and Social Aspects of Data (ESAD) IG was established in 2015 and focuses on ethical and social challenges of data archiving, sharing, and reuse. The group has been discussing the kinds/types of data that can be reused and under what circumstances, the work of institutional ethics bodies and boards, and areas of research and specific research aspects that create new challenges for data management. Discussions held in the ESAD IG span across many group activities at RDA, where each group contributes to ethical data sharing goals from their perspectives.
 

Additional links

Meeting objectives

With the establishment of research data infrastructures and networks, data sharing and reuse has become a reality for many domains. However sharing and identifying language and methods for describing the ethical boundaries of data reuse remains an unsolved challenge. During the previous two plenaries, our group had discussed concerns of different communities and possible methods for capturing ethical use criteria in a semantically interpretable and machine readable way.

In this plenary our group will continue the discussion on how to transtate ethical constraints and requirements to a FAIRly accessible structure and will focus on the ‘code of conduct’. Related to this topic, the need for a structured taxonomy for purposes of data reuse will be discuss.

Given the unique opportunity presented by the plenary being held on the African continent in Gabarone, another focus of the meeting will be discussing the specific challenges and perspectives of researchers from Africa. The ESAD Interest group would like to provide an open floor for discussion for participants.
 

Meeting agenda

Discussion :
The need and methods to capture ethical constraints and requirements (in a FAIR way).

Presentation:
Data Management, Research Integrity and Research Ethics : Is there a Need for Code of Conduct on Responsible Data Management?
by Heid Laine, University of Helsinki / Finnish Committee for Research Data / CODATA International Data Policy Committee

Discussion:
Challenges of providing consent for unknown future data reuse purposes. Is it possible to define context of reuse ?

Open floor for Africa:
Research Data from / for Africa - challenges and perspectives

For the Code of Conduct Discussion please see below pointers:
The current codes of conduct on research integrity have been largely written with the pre Open Science paradigm shift in mind. Their focus on publication ethics and definition of misconduct as fabrication, falsification and plagiarism doesn’t address the sensitivities that emerge from developments such as citizen science, big data, data privacy and artificial intelligence. Another problem is the artificial distinction between integrity and ethics, that these codes and their definitions often enforce. Incidents such as the recent case of mishandling personal data scraped from Facebook in what has become known as the Cambridge Analytica case, indicate that there could be significant lacks in understanding about responsible and ethical data management among research community members. Another development that has made data ethics an especially topical discussion is the European Union General Data Protection Regulation (GDPR). The GDPR has written in it a self-regulatory instrument, for stakeholders to create Codes of Conduct in order to show compliance with the law. CODATA International Data Committee is planning a white paper on the issue of data ethics and integrity. One of the questions to be addressed in the white paper is whether there is a need for a code of conduct on data ethics and integrity. Even without the white paper it is clear, that if such a task where to be taken on, it would require broad engagement from different organisations and individuals, as well as to take into account a variety of discipline specific viewpoints. To inform CODATA’s work and perhaps to continue the discussion also among the Research Data Alliance we propose this topic for discussion at the 12th Plenary in Gaborone, Botswana.

(*) International codes of conduct: Singapore Statement on Research Integrity (2010)
https://wcrif.org/statement
(**) European Code of Conduct for Research Integrity (2017)
http://www.allea.org/wp-content/uploads/2017/04/ALLEA-European-Code-of-C...
(***) Example of a recent national code: Australian Code for the Responsible Conduct of Research (2018) https://www.nhmrc.gov.au/guidelines-publications/r41

Audience
Researchers from all fields, research policy makers, representatives of funding institutions, representatives of publishers, representatives of NGO’s

Group chair serving as contact person
Oya Beyan

Type of meeting
Informative meeting