Health Data and Blockchain - RDA 10th Plenary BoF meeting

You are here

24 June 2017 1574 reads

Meeting title

Making use of Blockchain in dealing with Health Data

Short introduction describing the activities and the scope of the group: 

After a first BoF on Blockchain for Health held at RDA P9 in Barcelona (April 2017), where great interest was shown on the potential impact of this new technology in the Health domain, the Health Data IG is sponsoring the idea of establishing a WG focusing on Blockchain in health data with the aim of debating in depth the potential of such a system and whether the blockchain can ensure compliance with advanced data protection requirements (such as those defined, for instance, by the EU General Data Protection Regulation – GDPR), yet making it happen seamlessly and efficiently, at scale.
One of the interesting characteristics of the blockchain is the possibility of having smart contracts enacted through it. Smart contracts are executable pieces of code, stored on the blockchain for future execution, binding people and transactions to specific actions and outcomes and requiring no further direct human involvement after the smart contract has been made a part of the distributed ledger (which is what makes these contracts "smart" or self-enacting).
Smart contracts deserve special attention with regard to the possibility of empowering citizens by allowing them to specify under what predefined conditions, and to what extent, their data can be available for further research and possibly even for commercial utilization. 
Taking into account suggestions received from other IGs, this second BoF meeting aims at defining the ways in which this proposed WG on Blockchain can highlight useful developments also for other areas.

Additional links to informative material related to the group i.e. group page, Case statement, working documents etc

For further information see: www.myhealthmydata.eu

Meeting objectives

• Presentation, discussion and finalization of the objectives of the case statement in view of establishing a dedicated Working Group
• Identification of additional partners

Meeting agenda

(moderation: Edwin Morley-Fletcher, Yannis Ioannidis)
1. Presentation of the idea behind this BoF (Edwin Morley-Fletcher, President of Lynkeus; Yannis Ioannidis, President and General Director of the ATHENA Research and Innovation Center; David Manset, CEO gnúbila and Head of R&I Almery;) [30 minutes]
2. Specification of the objectives of the WG (discussion, all participants) [40 minutes]
3. Identification of other potential group members (all participants) [10 minutes]
4. Summary of the results, actions, and identification of contributions of the group members (Edwin Morley-Fletcher, David Manset) [10 minutes]
 

Audience: 

For this session, we invite Healthcare Data Scientists dealing with data licensing and patient privacy issues, distributed system experts, privacy and security researchers from informatics and computer science, Policy-makers for Healthcare, Health bioinformatics legal experts, Healthcare and Health Maintenance Organisation administrators, Clinicians (to use data technology to improve practice), Biomedical researchers (using analytical techniques), Pharmaceutical industry researchers and manufacturers, Medical equipment researchers and manufacturers, In silico modelling, testing and clinical trial experts and other interested professionals.

Group chair serving as contact person: Edwin Morley-Fletcher

Type of meeting: Informative meeting

Session Room: International 1

Session Time:  Thursday 21 September, Breakout 8, 11:00 - 12:30

Collaborative session notes:

https://docs.google.com/document/d/1UScN29-xHZ4pDp3z8u-3p-rszueFAm7U1yv-...

 

Session slides and materials:

Remote Access Instructions (Gotomeeting)

Online: https://global.gotomeeting.com/join/127820637

Phone:

Access Code: 127-820-637

Australia: +61 2 9087 3604
Austria: +43 1 2530 22520
Belgium: +32 28 93 7018
Canada: +1 (647) 497-9353
Denmark: +45 32 72 03 82
Finland: +358 923 17 0568
France: +33 170 950 594
Germany: +49 692 5736 7317
Ireland: +353 15 360 728
Italy: +39 0 230 57 81 42
Netherlands: +31 207 941 377
New Zealand: +64 9 280 6302
Norway: +47 21 93 37 51
Spain: +34 932 75 2004
Sweden: +46 853 527 836
Switzerland: +41 225 4599 78
United Kingdom: +44 20 3713 5028
United States: +1 (312) 757-3136