Short introduction describing any previous activities:
FAIR4Health project organized a very introductory BoF during the RDA P13 in Philadelphia, in order to introduce the objectives of the project and to meet the Community. This BoF was the beginning for assessing FAIR data Policy Implementation in Health Research. First contacts were made with related WG/IGs such as Reproducible Health Data Services WG and Health Data IG in order to discuss the best way to contribute to the RDA community.
Since then FAIR4Health project has made relevant advances in the definition of a guideline for implementing FAIR/Open data policy in health research addressing the following topics related to the implementation of such policy: technical barriers, ethical implications, security requirements, legal framework and cultural barriers.
This work was done following different methodological approaches: In one hand, a literature review addressed a comprehensive analysis of both scholarly and web-based publications about FAIR in general and specifically in health data management. The analysis resulted in an overview of the current status of the research on FAIR data, and specifically identified studies dealing with research data in the health domain. On the other hand, direct observations of stakeholders and users was performed through qualitative short interviews with experts, general open surveys and focus groups.
In this new BoF we want to start working in deep with the RDA international community to discuss and develop a guideline for Health Research Performing Organizations (HRPO) when defining and addressing FAIR/Open data policies.
Remote participation availability:
Additional links to informative material: