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Group Session January 23, 2025

Fresh start for data privacy – reorientation and next steps

Plenary: RDA 24th Plenary Meeting – Fully Virtual

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Meeting objectives

Collaborative session notes:
https://docs.google.com/document/d/1KyvmdeblCERDIdf6O9sjenCWzKKASb1v/edit#heading=h.9rqq07bgmuca

After revitalizing the IG at P18 the group members expressed significant interest in the continuation of the work of the IG. We initiated a closer collaboration with the Sensitive Data IG, starting with a common survey on privacy/sensitive data issues. The meeting at P19 was meant to align the new scope, define the key aspects of the group, and, not least, seek volunteers as chairpersons. Alas, the feedback to the incipient activities was rather limited. We understand that the waning interest is, at least in part, owing to the difficult conditions during the pandemic that made the relaunching of this IG difficult. Since that time, the group has encountered difficulties in making progress. The group has had but only two chairpersons, both have been dealing with health issues and could not contribute consistently. In addition, contributions and responses by the group members were scarce.
In this meeting, we primarily intend to clarify how and under what conditions the working groups can pursue its objectives in future. In response to the contributions and feedback from previous meetings, the objective is to refine the focus and formulate specific work tasks that the group members are prepared to support and contribute to.
Group members are specifically requested to volunteer for the role of group chair.
Everyone is called to contribute their experiences with privacy issues in their domain.
Depending on the interest and focus of the participants, a decision should be made to prioritize the technical, legal and/or other challenges we face in the responsible sharing and reuse of research data.

Meeting presenters

Joerg Geiger, anyone welcome

Meeting agenda

  • Brief round of introductions
  • Report on current status
  • Discussion on the future of the IG
  • Discussion on the scope and focus of the IG
  • Contributions of the participants
  • Call for volunteers
  • Any other business
  • Schedule future meetings
  • Wrap up

Target audience

Everyone is welcome. If you have experience with privacy issues, have developed, evaluated or are working with tools to protect privacy, are working with personal data but unsure how to protect privacy, are interested in privacy issues, or are just curious, no matter what, just join the meeting.
Our aim is to produce insights and guidelines from and for the community on responsible use of research data with due consideration of privacy implications.

Group Activities and Scope

The “RDA Privacy Implications of Research Data Sets IG” has experienced a phase of inactivity since P19. In line with the privacy IG objectives we discussed at P18, this session aims at finalizing the scope of the IG moving forward, be it the legal, the social, or the technical aspects and finalize them into a work plan with clear outcomes be it a report, best practices, or implementation guidelines.

Short Group Status

The meeting at P18 and P19 were fairly well attended the attendees clearly indicated a great interest in resuming with the work, but now we need to get things going. From the legacy projects of the IG, the majority of the attendees advocated the continuation of “best practices implementations for preserving privacy in research data”. Resuming the compilation of a glossary and a FAQ on privacy issues were also regarded as relevant projects. The attendees supported the suggested collaboration with the sensitive data IG to avoid duplicate or conflicting work.

Applicable Pathways

FAIR, CARE, TRUST - Adoption, Implementation, and Deployment
Data Infrastructures and Environments - Generalist

Please indicate at least (3) three breakout slots that would suit your meeting.

Breakout 3. Tuesday, 8 April, 07:00-08:30 UTC
Breakout 4. Tuesday, 8 April, 14:00-15:30 UTC
Breakout 6. Wednesday, 9 April, 07:00-08:30 UTC