NEW! February 2020: In order to make it easier for you to collaborate with your teams, we have improved the user experience of your Groups’ online space. A series of icons and labels now guide your activity and help you post messages to the group members, create and organise wiki pages, send events’ announcements, publish and organise the outputs and case statements resulting from your group’s activity and browse all the members of your Group. One new area also collects the Plenary sessions your group contributed to.

We hope that you’ll find this useful! Please do not hesitate to send your comments and suggestions to the RDA Secretariat here.

Secretariat Liaison:
TAB Liaison: 
Isabelle Perseil

This IG starter out as a Working Group, to explore issues related to scientific research data sets that contains human subject information, as well as related datasets that have the potential to be combined in a way that can expose private information. The goal of the group is to develop a framework for how researchers and repositories should appropriately manage human-subject datasets, to develop a metadata set to describe the privacy-related aspects of research datasets, and to build awareness of the privacy implications of research data sharing. While privacy is related to the ethical, legal and data publishing issues surrounding data management of which privacy is a part, this working group is focused specifically on privacy-related concerns.

After submitting their Case Statement, the group decided to become an Interest Group, to enable even broader discussion.