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Are tracking apps within scope?

  • Creator
    Discussion
  • #104537

    Claire Austin
    Participant

    Hello colleagues,
    To what extent are tracking apps within scope of the RDA-COVID-19 WG? It’s becoming a frontier of the wild, wild west (apologies for the cultural reference). There are a lot of issues: legal, confidentiality, data completeness, representativeness, data quality, reliability, verifiability, data ownership, data access, data openness, control, etc., etc. …
    Cheers,
    Claire

  • Author
    Replies
  • #129928

    Hi colleagues,
    I agree with Claire that this is hot topic right now. As far as I know, there are two models of collecting data from these apps – a centralised model and a de-centralised model. The issues that Claire mentioned i.e. legal, confidentiality, data completeness, representativeness, data quality, reliability, verifiability, data ownership, data access, data openness, control, etc., are being considered when evaluating the two main models. It might be tricky to compare the two models and recommend the better without enough knowing (A LOT) more about how these apps work. The recommendations can include “a proposed ethical way” of collecting data…
    Regards
    Priyanka

    (Sent from mobile device)
    Priyanka Pillai, MSc Bioinformatics
    Academic Specialist – Research Data Stewardship and Health Informatics
    Melbourne Data Analytics Platform (MDAP) and Digital Scholarship, Student and Scholarly Services Petascale Campus Initiative (PCI) Chancellery (Research)
    APPRISE https://www.apprise.org.au/
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    – Show quoted text -From: ***@***.***-groups.org on behalf of caustin via RDA COVID19 Coordination
    Sent: Thursday, April 30, 2020 7:39:05 AM
    To: ***@***.***-groups.org
    Subject: [rdacovid19-coordination] Are tracking apps within scope?
    Hello colleagues,
    To what extent are tracking apps within scope of the RDA-COVID-19 WG? It’s becoming a frontier of the wild, wild west (apologies for the cultural reference). There are a lot of issues: legal, confidentiality, data completeness, representativeness, data quality, reliability, verifiability, data ownership, data access, data openness, control, etc., etc. …
    Cheers,
    Claire

  • #129927

    My personal view on that is that these data (from tracking apps ) are
    not to be shared in anyway beyong their intended immediate use (for
    example the European group on ethics has recommended to delete tracked
    data as soon as they are not necessary anymore for fighting the epidemy
    “Restrictions of rights and freedoms that are imposed in order to save
    lives in an emergency situation, however
    – including those implemented through technological surveillance through
    mobile devices through to drones and surveillance cameras – need to be
    removed, and data need to be destroyed, as soon as the emergency is over
    or infringements are no longer proportionate. The public health
    emergency must not be abused to usurp power, or to permanently suspend
    the protections of rights and liberties.”
    What could be in the scope is items like, “” at a country or relevant
    jurisdiction level  :  is such Apps used or not; and may be the
    conditions for their use in these places exactly like other measures to
    help containing epidemy are used or not ; or kinds of tests and testing
    policies etc. can be of interest for future comparative studies of
    policies/strategies/efficiency, or future studies on social
    acceptability of such measures.
    It was not clear for me what was meant by taking Apps into account  :
     – is it data about some general characteristics of apps and their use
    or not; that information could be in  data about measures taken for
    combating the epidemy
     – OR is it “data collected through these Apps” and in that case I  do
    not think it is appropriate
    Also recommending a given commercial products is not what RDA is there
    for I think.
    Anne

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