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Privacy Implications of Research Data: A NISO Symposium
Sponsored by the RDA/NISO Privacy Implications of Research Data Sets Interest Group
Sunday, September 11, 2016, 9:00am – 5:00pm
Sheraton Denver Downtown Hotel
1550 Court Place, Denver, CO 80202
Even as the opportunities presented by offering access to and re-use of scientific data sets become more apparent, sharing human subject data in particular is being hampered by lack of a framework to address privacy and security concerns. The Research Data Alliance (RDA) and the National Information Standards Organization (NISO) are working to address that challenge through a joint interest group building a global consensus framework that will support both privacy and scientific data sharing.
On Sunday, September 11, 2016, with the generous support of the Sloan Foundation, as a stepping stone towards that goal, the RDA/NISO interest group will host a free public symposium in Denver on privacy implications of research data, gathering, sharing and reuse.
Attendees will hear from experts on the following:
• The feasibility of balancing research requirements with the need for privacy protections
• The limits of anonymization in the context of personally identifiable information
• The demands of security, privacy, and trust
• Privacy, policy, and data governance in university research practice
• Privacy and legal frameworks in the European Union
Confirmed speakers include John Wilbanks, Sage Bionetworks; Micah Altman, Massachusetts Institute of Technology; Christine Borgman, University of California- Los Angeles; Christoph Bruch, Helmholtz Association of German Research Centres; with additional names to be announced soon.
For more information, contact:
3600 Clipper Mill Road
Baltimore, MD 21211-1948
Save the Date: Data Privacy Symposium, Denver - September 11
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