What are the different steps you have to consider if you plan to share sensitive data (including human genetic data)?
Date and time: Wednesday October 27th 2021, 10.00-11.00 CEST
Funders, publishers and institutions are encouraging the archiving and sharing of research data. In case of quantitative data related to identifiable genetic information or health of persons, this is affected by various ethical and legal aspects including the GDPR. Most often the best and only option to share this kind of data is through controlled access repositories.
This event provides an overview of the necessary steps and involved parties to consider to enable sharing of this category of data and point to knowledge resources for further information.
Korbinian Bösl has a background in host-pathogen interactions, systems immunology and different omics techniques. He is coordinating Data Management within the national infrastructure for biological information ELIXIR Norway, the connected data management infrastructure BioMedData and the national Centre for Digital Life Norway for biotechnology research, education and innovation. Korbinian is also a member of the RDMkit editorial board and the Data Stewardship Wizard Advisory Board.
Discussion will be moderated by Nazeefa Fatima (ELIXIR Norway & BioMedData, University of Oslo).
Nazeefa Fatima (ELIXIR-NO/UiO): firstname.lastname@example.org
Korbinian Bösl (ELIXIR-NO/UiB): email@example.com
As part of this year’s Open Access Week, several Norwegian academic libraries, together with RDA (Research Data Alliance) Norway, present a number of events with topics related to open publishing, open science and data sharing. All events are digital, and are open to anyone interested.