Sharing COVID-19 Epidemiology Data

27
May
2020

Sharing COVID-19 Epidemiology Data

By Claire Austin


 

            

RDA COVID-19 Epidemiology 

            

Group Co-chair Liaison:  Priyanka Pillai

Subgroup Moderators:  Claire AustinRajini NagraniGabriel Turinici

            

Recommendation title:  Sharing COVID-19 Epidemiology Data

       

Authors: RDA-COVID19-Epidemiology WG

            

DOI: https://doi.org/10.15497/rda00049

            

Date last updated: 13th September 2020

Citation:  RDA COVID-19 Epidemiology WG (2020): Sharing COVID-19 Epidemiology Data, Version 0.06b.  DOI: https://doi.org/10.15497/rda00049

Disclaimer: The views and opinions expressed in this document are those of the individuals identified, and do not necessarily reflect the official policy or position of their respective employers, or of any government agency or organisation.

 

Abstract

An immediate understanding of the COVID-19 disease epidemiology is crucial to slowing infections, minimizing deaths, and making informed decisions about when, and to what extent, to impose mitigation measures, and when and how to reopen society.
Despite our need for evidence based policies and medical decision making, there is no international standard or coordinated system for collecting, documenting, and disseminating COVID-19 related data and metadata, making their use and reuse for timely epidemiological analysis challenging due to issues with documentation, interoperability, completeness, methodological heterogeneity, and data quality.

There is a pressing need for a coordinated global system encompassing preparedness, early detection, and rapid response to newly emergent threats such as SARS-CoV-2 virus and the COVID- 19 disease that it causes.
The intended audience for the epidemiology recommendations and guidelines are government and international agencies, policy and decision makers, epidemiologists and public health experts, disaster preparedness and response experts, funders, data providers, teachers, researchers, clinicians, and other potential users.

Output Status: 
Supporting Outputs under community review
Review period start: 
Monday, 31 August, 2020 to Monday, 21 September, 2020
Group content visibility: 
Public - accessible to all site users
Primary Domain/Field of Expertise: 
Medical and Health Sciences
Domain Agnostic: 
  • Francoise Genova's picture

    Author: Francoise Genova

    Date: 06 Jun, 2020

    I am not a specialist on Health data sharing by any way, but I am impressed by the work and results of the RDA COVID-19 WG and its sub-Groups. I saw in one of the previous versions of the WG Recommendations and Guidelines that the epidemiology sub-Group was working on a set of diagrams which likely could not stay in the final document for the sake of homogeneity. I am glad to see them in this Supporting Output.

    I see that the document is built on the sub-Group Recommendations and Guidelines, I guess identical to the ones which are listed in the WG document, plus a set of annexes. I suggest to add a section in the main body of the document, explaining the aim of this Supporting Output with respect to the main Recommendation and putting the annexes in context, with a narrative about how they help to build the global picture and 'support' the recommendations and guidelines - if the sub-Group members think that it would be relevant of course.

    Thanks to all those who participated in this endeavour.

    Best regards

    Francoise Genova

submit a comment