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Working Group
Raising FAIRness in health data and health research performing organisations (HRPOs) WG rev-002
Co-Chair(s): Shanmugasundaram Venkataraman, Celia Alvarez-Romero, Kristan Kang, Anupama Gururaj
Reuse of health and clinical research data (including social care, and hereafter referred to as health research  data)  has  major  restrictions  when  compared  to  other  research  data  in  the  biomedical domain.  This  primarily  pertains  to  the  concerns  imposed  by  privacy,  sensitivity  and  ethical  issues raised by making data freely available. Meanwhile, research data management (RDM)…
May 13, 2024
Working Group
Raising FAIRness in health data and health research performing organisations (HRPOs) WG
Co-Chair(s): Shanmugasundaram Venkataraman, Celia Alvarez-Romero, Kristan Kang, Anupama Gururaj
Adoption and application of the FAIR principles to research data has grown significantly in the few years that they have existed. They have been embraced in many quarters and have paved the way to creating a level playing field for data reuse. Nevertheless, they also pose challenges in some areas of research where reuse may…
March 27, 2024