Skip to main content

Notice

We are in the process of rolling out a soft launch of the RDA website, which includes a new member platform. Existing RDA members PLEASE REACTIVATE YOUR ACCOUNT using this link: https://rda-login.wicketcloud.com/users/confirmation. Visitors may encounter functionality issues with group pages, navigation, missing content, broken links, etc. As you explore the new site, please provide your feedback using the UserSnap tool on the bottom right corner of each page. Thank you for your understanding and support as we work through all issues as quickly as possible. Stay updated about upcoming features and functionalities: https://www.rd-alliance.org/rda-web-platform-upcoming-features-and-functionalities/

#129925

Sarah Jones
Member

Hi all
The community participation group had a discussion on apps specifically yesterday so this will be covered. I’ll incorporate your comments there
All best
Sarah
– Show quoted text -From: ***@***.***-groups.org on behalf of caustin via RDA COVID19 Coordination
Sent: 30 April 2020 01:06
To: ***@***.***-groups.org
Subject: [rdacovid19-coordination] Re: [rdacovid19-coordination] Are tracking apps within scope?
European Commission (2020 April 8) Commission recommendation (EU) 2020/518 on a common Union toolbox for the use of technology and data to combat and exit from the COVID-19 crisis, in particular concerning mobile applications and the use of anonymized mobility data. https://ec.europa.eu/info/sites/info/files/recommendation_on_apps_for_co
________________________________
From: ***@***.***-groups.org on behalf of cambonthomsen via RDA COVID19 Coordination
Sent: April 29, 2020 6:44 PM
To: ***@***.***-groups.org
Subject: Re: [rdacovid19-coordination] Are tracking apps within scope?
My personal view on that is that these data (from tracking apps ) are not to be shared in anyway beyong their intended immediate use (for example the European group on ethics has recommended to delete tracked data as soon as they are not necessary anymore for fighting the epidemy “Restrictions of rights and freedoms that are imposed in order to save lives in an emergency situation, however
– including those implemented through technological surveillance through mobile devices through to drones and surveillance cameras – need to be removed, and data need to be destroyed, as soon as the emergency is over or infringements are no longer proportionate. The public health emergency must not be abused to usurp power, or to permanently suspend the protections of rights and liberties.”
What could be in the scope is items like, “” at a country or relevant jurisdiction level : is such Apps used or not; and may be the conditions for their use in these places exactly like other measures to help containing epidemy are used or not ; or kinds of tests and testing policies etc. can be of interest for future comparative studies of policies/strategies/efficiency, or future studies on social acceptability of such measures.
It was not clear for me what was meant by taking Apps into account :
– is it data about some general characteristics of apps and their use or not; that information could be in data about measures taken for combating the epidemy
– OR is it “data collected through these Apps” and in that case I do not think it is appropriate
Also recommending a given commercial products is not what RDA is there for I think.
Anne
Le 29/04/2020 à 23:39, caustin via RDA COVID19 Coordination a écrit :
Hello colleagues,
To what extent are tracking apps within scope of the RDA-COVID-19 WG? It’s becoming a frontier of the wild, wild west (apologies for the cultural reference). There are a lot of issues: legal, confidentiality, data completeness, representativeness, data quality, reliability, verifiability, data ownership, data access, data openness, control, etc., etc. …
Cheers,
Claire

Full post: https://www.rd-alliance.org/group/rda-covid19-coordination/post/are-trac
Manage my subscriptions: https://www.rd-alliance.org/mailinglist
Stop emails for this post: https://www.rd-alliance.org/mailinglist/unsubscribe/69372

Dr Anne Cambon-Thomsen
Directrice de recherche émérite au CNRS
UMR 1027, Inserm, Univ Toulouse III – Paul Sabatier http://www.u1027.inserm.fr
Plateforme sociétale genotoul http://societal.genotoul.fr/
Ambassador of the Research Data Alliance (RDA) for health sciences and research ethics http://www.rd-alliance.org
37 allées Jules Guesde F-31000 Toulouse
Tel : +33 (0)5 61 14 59 59 Mobile: +33 (0)6 79 41 13 48 Fax : +33 (0)5 61 14 56 23 Skype: act_pro
E-mail :
Hi all
The community participation group had a discussion on apps specifically yesterday so this will be covered. I’ll incorporate your comments there
All best
Sarah
________________________________
From: ***@***.***-groups.org on behalf of caustin via RDA COVID19 Coordination
Sent: 30 April 2020 01:06
To: ***@***.***-groups.org
Subject: [rdacovid19-coordination] Re: [rdacovid19-coordination] Are tracking apps within scope?
European Commission (2020 April 8) Commission recommendation (EU) 2020/518 on a common Union toolbox for the use of technology and data to combat and exit from the COVID-19 crisis, in particular concerning mobile applications and the use of anonymized mobility data. https://ec.europa.eu/info/sites/info/files/recommendation_on_apps_for_co
– Show quoted text -From: ***@***.***-groups.org on behalf of cambonthomsen via RDA COVID19 Coordination
Sent: April 29, 2020 6:44 PM
To: ***@***.***-groups.org
Subject: Re: [rdacovid19-coordination] Are tracking apps within scope?
My personal view on that is that these data (from tracking apps ) are not to be shared in anyway beyong their intended immediate use (for example the European group on ethics has recommended to delete tracked data as soon as they are not necessary anymore for fighting the epidemy “Restrictions of rights and freedoms that are imposed in order to save lives in an emergency situation, however
– including those implemented through technological surveillance through mobile devices through to drones and surveillance cameras – need to be removed, and data need to be destroyed, as soon as the emergency is over or infringements are no longer proportionate. The public health emergency must not be abused to usurp power, or to permanently suspend the protections of rights and liberties.”
What could be in the scope is items like, “” at a country or relevant jurisdiction level : is such Apps used or not; and may be the conditions for their use in these places exactly like other measures to help containing epidemy are used or not ; or kinds of tests and testing policies etc. can be of interest for future comparative studies of policies/strategies/efficiency, or future studies on social acceptability of such measures.
It was not clear for me what was meant by taking Apps into account :
– is it data about some general characteristics of apps and their use or not; that information could be in data about measures taken for combating the epidemy
– OR is it “data collected through these Apps” and in that case I do not think it is appropriate
Also recommending a given commercial products is not what RDA is there for I think.
Anne
Le 29/04/2020 à 23:39, caustin via RDA COVID19 Coordination a écrit :
Hello colleagues,
To what extent are tracking apps within scope of the RDA-COVID-19 WG? It’s becoming a frontier of the wild, wild west (apologies for the cultural reference). There are a lot of issues: legal, confidentiality, data completeness, representativeness, data quality, reliability, verifiability, data ownership, data access, data openness, control, etc., etc. …
Cheers,
Claire

Full post: https://www.rd-alliance.org/group/rda-covid19-coordination/post/are-trac
Manage my subscriptions: https://www.rd-alliance.org/mailinglist
Stop emails for this post: https://www.rd-alliance.org/mailinglist/unsubscribe/69372

Dr Anne Cambon-Thomsen
Directrice de recherche émérite au CNRS
UMR 1027, Inserm, Univ Toulouse III – Paul Sabatier http://www.u1027.inserm.fr
Plateforme sociétale genotoul http://societal.genotoul.fr/
Ambassador of the Research Data Alliance (RDA) for health sciences and research ethics http://www.rd-alliance.org
37 allées Jules Guesde F-31000 Toulouse
Tel : +33 (0)5 61 14 59 59 Mobile: +33 (0)6 79 41 13 48 Fax : +33 (0)5 61 14 56 23 Skype: act_pro
E-mail :

Homepage