Skip to main content

Notice

We are in the process of rolling out a soft launch of the RDA website, which includes a new member platform. Existing RDA members PLEASE REACTIVATE YOUR ACCOUNT using this link: https://rda-login.wicketcloud.com/users/confirmation. Visitors may encounter functionality issues with group pages, navigation, missing content, broken links, etc. As you explore the new site, please provide your feedback using the UserSnap tool on the bottom right corner of each page. Thank you for your understanding and support as we work through all issues as quickly as possible. Stay updated about upcoming features and functionalities: https://www.rd-alliance.org/rda-web-platform-upcoming-features-and-functionalities/

#129233

Dear all,
This is a kind reminder to invite you to the session we are organizing
at the RDA 19th Virtual Plenary Meeting, part of the International Data
Week

to present the results of the WG on Raising FAIRness in health data and
health research performing organisations
.
In order to share knowledge and enrich the results of this RDA WG, we
ask for your feedback before and during RDA Plenary 19. Our session
*”Finalising guidelines for FAIR adoption in health research performing
organisations” *is scheduled in Breakout 4: *Tuesday, 21 June 2022 at
23:30 – 01:00 UTC*. (PLEASE NOTE: the session starts at 23:30 on 21 June
and ends at 01:00 next day, 22 June).
We share with you links to documents where we have collected the results
of these last years. Please note that these are *drafts*, and that the
aim is to complete them with your feedback:
* Landscape analysis

on FAIR adoption of health research data taking into consideration
levels of privacy and ethical considerations granted to such data in
regions around the world.
* Impact assessment

on of such restrictions in terms of research, as well as scientific,
financial and societal impacts.
* Community survey

on “Data Sharing and FAIR Data Policy”.
* Draft FAIR Guidelines for HRPOs

for implementing FAIR data policy in health research.
Thank you in advance!
We look forward to seeing you at the Plenary.
Kind regards,
S. Venkataraman, Celia Alvarez-Romero, Kristan Kang and Anupama Gururaj
– the co-chairs.
*Celia Alvarez Romero, MSc*
*Instituto de Biomedicina de Sevilla*
Fundación Pública Andaluza para la Gestión de la Investigación en Salud
de Sevilla
Hospital Universitario Virgen del Rocío. Centro de Documentación Clínica
Avanzada
Avda. Manuel Siurot s/n – 41013 SEVILLA
Tel. +34 *955 013 313 – (313313)* ::: Fax. +34 *955013310 – (313310)*