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Homepage Forums RDA COVID-19 Main Forum RDA COVID-19 Posts RDA COVID Group – some things to note RDA COVID Group – some things to note

#130104

Dear All,
Glad to see this working group started under the RDA. I have been a
long-time member of the RDA as part of EMBL-EBI, ELIXIR and EOSC-Life and a
new member of the COVID-19 WG. Looking forward to collaborating with some
of you.
This email is just to introduce Health Data Research UK
, which is the national data science institute for
health data in the UK.
Understandably we are currently on a war footing and the national lead to
collect, assimilate and distribute relevant national health datasets for
the COVID19 challenge. We have set up a landing page for all our activities
here: https://www.hdruk.ac.uk/covid-19/ including a strategy doc here:
https://hdruk.box.com/s/01x3rf1yc1ps5kcpv3durglu3vhgquiv
We have started collecting any useful national and international resources
for COVID-19 research in an open Github repo:
https://github.com/hdruk/covid-19 and international COVID-19 Slack channel:
https://healthdataresearchuk.slack.com/archives/CV5B38SF3 (with over 357
members) and signup link here:
https://hdruk.us18.list-manage.com/subscribe?u=aebfef05d173a4888d1cde535….
We coordinate our efforts with the NHS in all four nations (NO, there is no
one NHS :), NHS Digital, NHSX, and UK Health Data Alliance Members –
https://ukhealthdata.org/members/ which is comprised of many large data
custodians in the UK.
We also had previously released our national health data registry via our
Innovation Gateway MVP – https://healthdatagateway.org which contain
general (no COVID-19 yet) health datasets available for researchers to
request access. The next phase of the Gateway will aim to streamline the
discovery and access process of requesting datasets for research, including
access to secure trusted research environments by Oct 2020 (probably
accelerated due to COVID-19)
Let me know how we could be involved in the RDA Working Group and how we
can help. We are extremely keen to make sure the resources we collect are
standardised and interoperable across worldwide health care efforts. Please
feel free to reach out to me, if you think we could collaborate and
harmonise work across the national clinical care pathways.
Best wishes
§ Susheel

*Dr Susheel Varma
| Director of Engineering |
Health Data Research UK *
Health Data Research UK, Gibbs Building, 215 Euston Road, London, NW1 2BE
+44 (0)7545 399 129 | ***@***.*** |
@susheelvarma
On Wed, 25 Mar 2020 at 20:09, gayo via RDA-COVID19 <
***@***.***-groups.org> wrote: