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#129954

Dear Iryna and Amy, dear all
My two cents worth to your list, trying to optimize the meeting on Thursday:
a) DMP fact sheet is good low-hanging fruit, but not very useful.
It can be essentially based on the excellent recommendations of Science Europe
https://www.scienceeurope.org/our-resources/practical-guide-to-the-inter
The only interesting “fact”: the main difference between DMP guidance in most US
institutions and the European templates (by looking at corresponding dmptool
platforms) is that the European model has questions about data management during a
project, whereas in the US they are mostly interested in the “after”.
b) I noticed that the Clinical subgroup this morning in their decision tree
indicated “demographic” data is needed. The Epidemiology subgroup is investigating
which data/information need to be collected as part of epidemiology studies
–> obviously, both need social sciences data (and I dont think demographic data is
enough). How to leverage social sciences data (and which data to leverage) so that
researchers in these groups can take advantage of it? And, vice versa, how would
social sciences research profit from clinical and epidemiological data?
In this sense, good case studies would be great, in particular if they showed this
mutual leveraging.
c) legal basis for processing personal data will depend on local legislations – and
in Europe their local implementations of GDPR, which vary from country to country.
Barring recommending awareness of GDPR, is there anything else that can be done? Or
pointing out the existence of GDPR to non-european researchers?
Claudia