Access to Human Data Makes a Difference

The ELIXIR Bridging Force IG bridges the activities of the ELIXIR “Data For Life” research infrastructure in Europe with the activities of RDA in two directions: bringing in expertise gained in European bioinformatics into RDA, and bringing RDA experience to the benefit of the European Life Science researchers. The ELIXIR Bridging Force IG was one of the first discipline specific IGs of the RDA.

The Health Data IG relates to privacy and security issues in Healthcare. 

The FAIRsharing WG has produced one of the 12 outputs recommended by RDA, encompassing: a registry of curated and interlinked records on standards (for identifying, reporting, and citing data and metadata), databases, repositories (and knowledge-bases) and data policies (from journals, publishers, funders and other organizations); and related recommendations to guide users and the producers of standards and databases to select and describe these resources, or to recommend them in data policies. With a growing adoption list (a ‘live’ updated version can be found here: https://fairsharing.org/communities), the FAIRsharing WG is focusing on refining and expanding connections with other RDA IGs and WGs relevant to its mission and scope, as has already happened with several domain-specific (e.g. ELIXIR, Biodiversity, IGAD) and generic groups (e.g. Standardization of Journal Policies). This joint session with ELIXIR continues this tradition.