In this session we will present and discuss the current status of handling sensitive human data, particularly in light of the European 1+ Million Genome Project. The ELIXIR Bridging Force IG will present achievements on the Federated European Genome/phenome Archive, and the Health Data IG will present achievements in standards in electronic health records and legal aspects. An update from the Block-chain Health WG will also be provided.
The session will answer questions like:
How does Data make the Difference?
How can we have human data make the most difference?
What does ELIXIR bring to this?
Draw out the stack of technologies needed - what is in place? Data, technologies, access.
What other things are needed?
The session will end with a “Gap analysis” with input from RDA members, partners and participants.